It's been awhile since I posted anything here, so I thought I'd give an update. My 3 months post-op Is in 10 days. The doctors tell me that the milestones are 3 months 6 months and 1 year. At first I had to go to the Florida hospital Orlando clinic every week and now that's every two weeks. I take 22 pills a day which will hopefully go down to 2 a day for the rest of my life. Doctor says I'm doing fine except for the incision that opened up a little bit. So I'm not doing any swimming, but I'm now walking 2 miles a day on the beach. I was on Facebook this morning and I saw a post from another transplant patient which describes exactly what is going on in my life after transplant. I could not have said it better. The only thing she doesn't mention is how messed up your sleep patterns are. Another is: I don't like calling or texting much anymore. So I apologize if I've been distant with anyone. Hopefully this will change in time.
Vicki T wrote
I had my transplant sept 30. I miss grapefruit and squirt lol. Such a small price to pay. The things I didn’t know about my transplant: you will: have the biggest incision known to any surgery, you will be crazy and reality will not exist for a bit. You will have to learn how to eat, walk , talk, put things together in your head will be a joke( still are for me). Using a phone will be too heavy and complicated for a bit. Computers, paying bills, short term memory will be gone. You will be close to death and out of your mind before and after surgery, for weeks both ways. You will never be so happy in your life: to god, your donor, and people who were there , really there before and after, when most you thought would be there will disappear. Your emotions will fly, grateful, confused, scared, memory loss, will this work, you will have post traumatic stress. You will never feel more mentally handicapped, in more pain, cry as much, be more dependent or emotional,wonder why i was spared, or grateful in your life. Recovery is very long. You will mostly live in a clean bubble and see no one (but a few that love you)for six months. Yet never love life more than you ever have. So I’m telling you what I didn’t know, so you know.