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Posted 2019-01-23T03:09:09Z

Paul dances like nobody’s watching and I just don’t care any more

Straight from Lisa.  Read on and enjoy!

My amazing employer, ECFMG, hosted its annual holiday party on Friday.  Paul is typically on a short-leash for these types of events but on Friday he was out on the dance floor with his 1980’s moves, bumping in to people, giant smile on his face, awkwardly spinning, drink spilling, and hands waving back and forth like he was at a rock concert.  If you have witnessed Paul dancing (KC-10 family has numerous videos but this site has not let me post any - Slim) I know you are smiling at the memory and some of you may understand why he was on a short-leash.  When someone you love has cancer that kind of stuff just does not matter anymore.   He was having fun and I was smiling watching him dance with my co-workers.  

Six months post bone marrow transplant is an important hurdle as 50% of the time if the cancer returns it will be within this window. Paul had his 6-month biopsy on Thursday. Test results were released Saturday (Jan 5th) during the Wildcard games and they looked odd enough that I emailed our Hopkins doctor.  He returned my anxious wife email this morning (yes, on a Sunday) to confirm that there continues to be no signs of leukemia.

I read the email from the doctor to Paul and Brooke with tears of relief and said “we need to live and not worry” and then I quickly corrected myself and said “No! we need to live like Paul HAD cancer.” We need to enjoy our moments together, the good, silly, awkward, and difficult.   We need to dance like no one is watching.  We need to love like there is no tomorrow. That is what life is really about.

What’s next?  Clinically, Paul will have another bone marrow biopsy in six moths.  This is the second big hurdle as 75% of relapses occur within one year of the bone marrow transplant.  Professionally, because the FAA won’t clear him medically to fly for another 18 months, he will keep busy by taking a Calculus class for fun and tutor math students at the local community college. (Slim note - Paul said he plans to yell loudly to Brooke and Josh while at BCC in order to find out where and when the next student led party is happening so he can attend and dance).

There is no way that we would have made it through this year without the love and support of our family, friends, co-workers, furry family members, neighbors, and angels.   Your prayers, cards, text messages, phone calls, care packages, visits and emails, lifted our spirits during difficult days and gave us the strength to endure as the good clinicians worked their medical miracles.

Our 2019 New Year resolutions are to dance like nobody’swatching and love like there is no tomorrow.

XOXO  

Lisa

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Comments (4)

  • Jani Van Gorp
    Jani Van Gorp

    Praising God for a clear 6-month biopsy and praying for another one in June!! Keep dancing and enjoying every day!

    10 months ago · Reply
  • Teri Grimes
    Teri Grimes

    That's the best news ever!!! Save a dance for me!!

    10 months ago · Reply
  • Denise Zander
    Denise Zander

    I can't stop smiling and crying tears of joy! This is the brother I know and love! Dance on...

    10 months ago · Reply
  • Ed Hardin
    Ed Hardin

    Psalm 149:3 Let them praise His name with dancing; Let them sing praises to Him with timbrel and lyre. Wonderful to hear! While God didn’t put us on this earth to frustrate or make them angry, as a parent I have to believe we’re called to embarrass them just a bit. ;) Keep dancing, Paul!

    10 months ago · Reply