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Posted 2019-03-15T06:48:34Z

Long overdue update

It’s been a long time since my last post, and oddly, the time has flown by. While a welcome reprieve from the excitement of the hospital, it’s been more challenging figuring out where I ‘should be’ in this recovery process. It’s been an exercise in patience and commiting to put one foot in front of the other.[...]

Posted 2018-11-08T03:10:17Z

Tides have turned

It's been a long and often rough road to get here, but I am finally starting to feel like my old self again (now with more super stem cells!). These last few weeks have seen visits from much loved friends and family, a few wonderful weekends at home (YES!) and small trips out to explore San Francisco. I appreciate that this time was for much needed healing, but it was starting to feel like Dr. Seuss's 'waiting place' without all the fancy hats. I stepped out of my Friday appointment feeling, for the first time, that the end of this phase is just around the corner![...]

Posted 2018-09-21T05:21:38Z

One month in...

So it's been just over a month since transplant, and my Mom and I have settled into our apartment in the Outer Sunset neighborhood of San Francisco. The apartment is really cozy and comfortable, we're a couple blocks from the beach and Golden Gate Park, and most importantly, it's a good home base to heal from. (bonus points for a gas fireplace!)[...]

Posted 2018-08-26T23:13:22Z

Pauly 2.0

It's official! I'm now a chimera (pronounced kīˈmirə) and just waiting for the new super powers to kick in. The new stem cells should have all found their new homes by now, and are just starting to get to work rebuilding my immune system. I basically have a baby's immune system, and will have to get re-vaccinated. My blood type switches in a couple months, and I should be fully integrated by Christmas. The hospital staff refer to it as my second birthday, and that seems appropriate. I'm just certain it's going to make me better, faster, and stronger![...]

Posted 2018-08-17T02:29:01Z

Fancy new stem cells!

The transplant went off without a hitch yesterday afternoon, and now I'm the lucky recipient of 5.2 million mighty stem cells! I had the day to prepare myself to receive this amazing gift, and it was a lovely process. I visualized all of you supporting and encouraging me from near and far, and it gave me comfort beyond words. I attended a guided meditation, and that put me in such a great place for this. Christine arrived just in time to be there with me for the transplant, which was perfect. [...]

Posted 2018-08-13T23:26:42Z

Back in the saddle and going strong!

I've been back at UCSF since Tuesday, and yesterday finished up my final (*fingers crossed* FOREVER) round of chemo before transplant. By all of their tests, there is no detectable leukemia to be found in my body since my first round of chemo in May. Basically, everything is right on track for me to get my magic delivery of stem cells this Wednesday!! Wooo Hooo![...]

Posted 2018-07-14T19:41:28Z

Great News! ...and can you help?

We just learned I have a confirmed bone marrow donor!! She’s a German woman, and I’ll acquire her blood type, XX chromosomes and who know what else on Aug. 15th.  One step closer to cure! I’m overwhelmed by this gift of life from someone I will likely never meet.[...]

Posted 2018-07-11T03:09:00Z

Fingers Crossed!

I'm 10 days into this round of chemo, and it's a completely different experience from the first. It's been so uneventful, it's almost boring. All blood work keeps coming back with good news, and if it keeps up, I'll likely get out a few days early this time. Yay![...]