August 11, 2015 - New Neurology Plan - Additional 12 Hours

They began lowering his Propofol to 40 mcg/kg/min (from 50) to begin the weaning process. Perry was exhibiting more frequent head turns, twitching from all extremities, his eyes were partially open and he continued to have mouth/jaw movements. Based on this, the neurology team now recommends to increase his dosage of Vimpat (anti-seizure medication) and keep the Propofol at 40 mcg/kg/min. They will continue with video EEG & remote observation and want to give at least another 12 hrs before next plan is established based upon findings with the above plan.

Will update when anything additional information is available.

We have established a designated fund (“Perry’s Transplant Fund”) for those of you wishing to provide financial assistance to cover Perry’s enormous and mounting medical, housing and rehabilitation expenses. We appreciate everyone’s concern and generosity in this time of great need. Any amount that you can give would be a huge support for Perry and his family. Every little bit helps!  

You can make credit card donations on the "Donations" tab above.  Checks can be made payable to “Perry’s Transplant Fund” and can be sent to the following address :

Perry's Transplant Fund  c/o Nick J. DiGiovanni

22050 Coriander Lane

Frankfort, IL 60423

Thank you all again for your prayers and continued support to this point and all future well wishes to come. Perry and his entire family truly have a tremendous support group!