Last night Perry was having some labored breathing while Misty and Michael were able to be in the room. Misty told the nurse and the Respiratory Therapist the laboring being witnessed was not normal, so they suctioned and also used ambu bag to get a mucous plug out. Once removed, his breathing was not as labored. Misty also reported to the nurse that his left lung sounded a bit moist just by feeling his chest and that has continued through today. They are now intermittently suctioning his trach to continue to try to keep his airway clear.
He also has been a bit swollen in arms, hands and legs so Pulmonology started him on Lasix and they will be checking on his total IV volume/dialysis output with the Nephrology team. The infectious disease team said things are still remaining status quo, so that is a good sign regarding his yeast infection and there are no plans to remove any chest tubes today.
Misty was present when the skin nurse came and she has added some items to prevent/decrease skin breakdown on his sacrum (tailbone area) and groin area and they took pictures for future comparison. In order to keep his skin irritation at bay, they also ordered a different type of mattress (sand) that should help.
We received another report from the neurology team via a call to the nurse saying they have not seen seizures on EEG since Sunday, so it was OK to decrease his Propofol dosage again from 30 down to 20. He is still exhibiting head turns, mouth clenches, jaw movements and twitches from all extremities, but nothing new from the last few days. Misty thinks she has seen a little more response/reaction compared to yesterday and as soon as Michael walked in Perry seemed to turn his head towards him and focus his eyes on Michael's. We think we are getting some of these responses in spurts, but it is hard to tell because we are not getting them regularly.
He started back up on Norepinephrine & was off the Vasopressin earlier in the morning, however he has been off of both for the past few hours and his blood pressure has remained stable so that is another sign the heart is doing well. He received 20-30 minutes of physical therapy today, which is the first he has had since sitting up in his chair, but it was good to see them at least getting some movements in his arms and legs as he has been on his back for a majority of the last 2 weeks.
Michael and Ryan will be heading back to Chicago for the weekend as Michael is moving out of his apartment Friday and Ryan has work on Saturday and Sunday. Thank you all for your continued prayers.
We have established a designated fund (“Perry’s Transplant Fund”) for those of you wishing to provide financial assistance to cover Perry’s enormous and mounting medical, housing and rehabilitation expenses. We appreciate everyone’s concern and generosity in this time of great need. Any amount that you can give would be a huge support for Perry and his family. Every little bit helps!
You can make credit card donations on the "Donations" tab above. Checks can be made payable to “Perry’s Transplant Fund” and can be sent to the following address :
Perry's Transplant Fund c/o Nick J. DiGiovanni
22050 Coriander Lane
Frankfort, IL 60423
Thank you all again for your prayers and continued support to this point and all future well wishes to come. Perry and his entire family truly have a tremendous support group!