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Posted 2015-08-14T17:00:44Z

August 13, 2015 - Afternoon, Evening, & Tuck In

Earlier this afternoon, as the swelling in his hands had significantly reduced, I placed his wedding ring on him & held Doreen's Mother Mary medallion & Four Way Cross in the palm of his left hand as we (Perry & Misty) listened to music.  In order to feel the beat of the music via vibration, I placed my cell phone inside of a pillowcase on his chest.  Not only could he feel the vibration of the music but he also may have felt the many, many incoming text message notifications, emails, & alarms on my phone.  I was also trying to take a reprieve.

As I was holding his hands, singing along to the songs (me), gently rocking his bed at times to the beat of the music, & swaying his hands as if to dance, we heard some great songs reflective of special moments of the past & many of which were appropriate for the present & the future...

The Beatles:  When I'm Sixty-Four, I Saw Her Standing There

Simon & Garfunkel:  Sounds of Silence, Cecilia

Rolling Stones:  Satisfaction

George Hamilton:  While My Guitar Slowly Weeps

Paul McCartney:  Baby I'm Amazed

Queen:  We Are the Champions  

Upon entering Perry's room ~9pm this evening, he seemed to be much more alert with his eyes open much wider than my (Misty) previous visit & tracked me with his eyes as I approached toward his bedside.  I provided him with an update that Michael had gotten on the road to return home & Ryan would be staying until tomorrow evening. His right hand was a bit cold so his nurse covered him with a warm blanket & I continued to hold his hands under the blanket.


I  agree that we could see a range of emotions in his eyes in the brief moments that we noticed he was consciously tracking us. Calmed by the sight of us at his bed, scared, frustrated, and crying.  I tried to work him out a bit to see what he could handle.  He was able to track movement to his left for a period of 10-20 seconds before fading out and eliciting seizure like symptoms.  He seemed to have more pronounced jerking/movement of his right hand when we were holding it while he was maintaining eye contact , but we will continue to test this out when he has another wave of consciousness to see if it is purposeful movement.  All of these responses happened while dad was without a heating blanket and in a controlled hypothermic state (low body temperature).  Much of the medical literature I have been reading has stated that this is a good treatment for patients that experience an anoxic brain injury, however, dad has many other variables that need to be maintained so this type of treatment isn't as 'black and white'. As we were getting ready to leave for the night they placed the heating blanket back on him, and he seemed to slip back into a sedative/unresponsive state, and his blood pressure started fluctuating from high to low.  The nursing team increased his propofol (sedative) and found the right dosing of meds to get his blood pressure back in range after a stressful 10 minutes. He's since been in a sedative state with much less spasticity and twitching.  

We will continue to monitor his cognition under each thermal state to see if correlation is indicative of causation.  


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Comments (3)

  • Dianne Cook
    Dianne Cook

    Praying for you all. Perry, you are so incredibly strong...keep fighting your way back to your family. They are by your side for every minute of the day they are able. There is so much love coming at you from so many different've got to be feeling it. This transplant business is clearly a marathon and not a sprint...maybe even a triathlon!! I'm with you for the whole matter how long it takes. Gentle hand squeeze and a kiss on your forehead from one of your old neighbors on Promethian Way...Dianne ⚡️⚡️

    4 years ago · Reply
  • Dennis G. Barker
    Dennis G. Barker

    Dear Misty and Ryan: GOD is so GOOD! And from your postings we are all being taught.....WHAT LOVE IS! Thank You GOD, and Perrys' entire team!

    4 years ago · Reply
  • Joni DeBusk
    Joni DeBusk

    Our God is an awesome God. Hugs and blessings to each of you. Hang tight, there is light at the end of this tunnel. Constant arrow prayers all the time! Love in Christ, Joni DeBusk

    4 years ago · Reply