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Posted 2015-08-16T20:39:22Z

August 16, 2015 - A Day of Rest

Had uneventful night. This AM had BM (light brown) sent to lab to check for occult blood; gastric suctioned secretions this morning were consistent with formula which had been stopped since ~1115a yesterday, so an abdominal KUB (kidney, ureter & bladder) X-ray was done to identify proper placement of feeding tube as well. Propofol (sedative) has been off since early this morning. He had been eye tracking to RN & was much more alert. An order to increase Klonopin to lessen the extent of the myoclonus was obtained, & he has been able to have body calmness & remain off the Propofol thus far - yay!!! I went to Holy Rosary Church in Little Italy & said the Novena to St. Anthony. It's within walking distance to the Transplant House of Cleveland. The Feast of the Assumption of Mary is underway, so I took advantage of feeling some sunshine & took in some really great smells with all of the food stands, got Italian ice for the staff at Corbo's Italian Bakery & of course had to get a sesame cookie like Grandma Martha used to make, & also brought some escarole & a chicken cutlet with gravy on fresh Italian bread from Angelo's Nido Italia - anticipation!!! Angelo's is where Perry & I went during one of our October anniversary trips to Cleveland. Angelo is who also asked his brother Nick for a picture of Perry, so it could be placed on the Blessed Mary's statue yesterday for the Feast of the Assumption of Mary. As walking into unit, Matt (RT) said Perry had been really alert & was tracking him really well & he was so thrilled to see that. Upon my arrival, ~1p, he was sleeping. His nurse gave me some additional updates since our phone conversation this morning. His hemoglobin has been staying in the 8's today, his platelets @ 135,000 (had been as low as 20,000 in recent days) & the majority of all other labs within normal limits. The feeding tube needed to be placed further down beyond his stomach according to X-ray. The sand bed had to be ordered special from Hill Rom, the bed manufacturer so it is anticipated to arrive Monday. He's been getting turned every 2 hrs today & still off the Propofol & the norepinephrine has been off too - systolic BP in the 100-110s, HR in the 80s. He's awakened a few times & he's definitely tracking & also seeming to track activity at the Nurse's Station too. Matt stopped by & he opened his eyes & looked directly at Matt as he talked to him & also nodded his head "yes" several times when he asked if he remembered him -ABSOLUTELY FANTASTIC as short term memory indication!!!!! At times, he's been drawing his R hand to his L chest, grimacing with swallows & waking up on occasion & looking right @/& for me. He's been able to nod "yes" since I've been here twice to indicate he's having pain so he's received Fentanyl bolus as needed. Formula feeding were resumed at 2p @ 60 ml/hr (=2 oz/hr) which had been off since ~1115a yesterday to rest his stomach & decrease irritation etc related to the bleeding yesterday. Since feeding was started he's been having yellow green bile - a welcomed sight. He has been sleeping calmly.

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Comments (5)



    4 years ago · Reply
  • Dianne Cook
    Dianne Cook

    Yes!! What a wonderful post!! You deserve a dozen of those sesame cookies!! Hope the rest of the continues to be positive as well? ❤️❤️❤️

    4 years ago · Reply
  • Diane Kissinger
    Diane Kissinger

    Fantastic! Misty your entire family is an inspiration to all! The information in these posts is phenomenal & helpful to all that read them. Thank you. I'm glad you were able to get out for a bit for some much needed personal time. So happy to hear that Perry is doing better! 😘

    4 years ago · Reply
  • Monica Ingram
    Monica Ingram

    What great reports! thank you so much. Wonderful news YES!!!!!!! I'm with the novena also. Started Sat. and will continue for the 9 days. God Bless You, Perry and all the staff.

    4 years ago · Reply
  • Joni DeBusk
    Joni DeBusk

    Good Morning! So thankful the news from yesterday all sounds wonderful. Thankful you where able to get out in to the sunshine and fresh air, attend church and have some much needed personal time. I have never heard of a sand bed that that sounds awesome. I always loved water beds and I now sleep on memory foam....sand sounds perfect for someone who has to stay in bed all the time. Soon, hopefully Perry will be able to get back into that chair. We all loved seeing that picture of him. These small set backs are going to be in the past and the future looking brighter. You two (really 4) have so very many people praying for all of you (y'all) and you know how many wonderful friends and church family your parents have here so you need not worry about them. Take care of yourself while that wonderful staff takes care of Perry. You know God's in charge so try not to worry too much and remember He's always with you. Love, Joni & Ken

    4 years ago · Reply