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August 16, 2015 Sunday/Sonday

His special ordered sand bed arrived a day early - so we will pretend he's on a beach in.....well all sorts of beautiful beach locations. He slept all of the day except for a few brief episodes of sudden eye openings & alertness. He continued to eye track when he was awake. He was still off the Propofol when I left @ 1015p & did very well with the myoclonus starting to occur about 20 minutes before his evening dose of Klonopin & was able to return back to sleep by 1005p. My sister will be driving to Cleveland tomorrow to sit with me at his bedside. She will be able to hold Perry's hand at intervals, so I can begin to get going on the many things I need to be accomplishing via computer. A special thank you to our sons & Perry's brothers, Nick & Jim, for all of their assistance with getting mail to us, setting up accounts, & taking over the bill paying responsibilities in the interim of the last 3 weeks. An enormous thank you to all of those who have donated to Perry's Transplant Fund, for gifts received, & for sending special treats to the staff caring for Perry & other patients in the CVICU, for the cards with comforting sentiments, & for being with us on this journey. Wishing everyone a good night's rest & the start to a week full of many blessings. We cannot thank everyone enough for the all of the continued prayers, love, & support!!! Monday, August 17 starts week 3 post-transplant. Please continue to pray for Perry's donor & the donor's family & friends.

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Comments (5)

  • Dennis G. Barker
    Dennis G. Barker

    What a blessed day at Cleveland Clinic! One of near total celebration here. The sun and the SONshine has brightened our horizons. All hope is with and in God!

    4 years ago · Reply
  • Carol Garard
    Carol Garard

    My thought and prayers are with you! God is not a God of disorder but of peace. 1 Corinthians 14:33 Love Keith and Carol Garard

    4 years ago · Reply
  • LINDA  ALLEGRO
    LINDA ALLEGRO

    I just read Paul the latest post and it made him so happy....our thoughts and prayers are with you both and the donors family. We have a wonderful family..Misty ❤ ❤

    4 years ago · Reply
  • Janelle Najar
    Janelle Najar

    Great news!

    4 years ago · Reply
  • Darlene
    Darlene

    So glad your sister will be there with you,it is such a big relieve when you have family.glad to hear perry's laying on a sand mattress and can think of the beech .god bless your all in our prayers daily.miss you all and perry.harvey and darlene kari and nick.god be with yas...

    4 years ago · Reply

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