Awake upon my arrival @ 1145a; he is now nodding both "yes" & "no" to questions today; has remained off the Propofol (sedative) & the Levophed (Norepinephrine for BP) since yesterday; has Kirstin as his nurse since 11a - she was on the day of the 5th & saw as a bystander & helper all that he had been through that day so aware of just how special he is!!!! The physical therapist was in so he was providing some gentle PROM (passive range of motion) to his arms, shoulders, hands, feet, ankles, & legs - & Perry was able to assist & resist against the pulls during the exercises - so awesome!!!!; he tired intermittently but was a definite participant AND the best news of all - He winked at me 3 times 😉😉😉 - it wasn't that he had a 🐝 in his eye either - he winked when I asked him if he loved me!!!!! I'm in 7th Heaven. I tried to get it on video but he zonked out from working so hard getting practice for his golf swing ⛳️ & practice shooting🔫 for when he becomes Olivia's back-up officer on Law & Order or the next Die Hard, True Lies, & for when he gets casted as the next James Bond!!!!!! He also nodded yes when I asked if he believed me that he was doing awesome!!!!!
We returned about 9p - he was awake & tracking very nicely - I got nods "yes" & "no" & he mouthed some words & mouthed a kiss - so I got 2 kisses!!! He also fell asleep as I held his hand & had given up the chair so Denise could sit down & when he awakened because my voice had moved further away & rather aware he moved his arm & pointed for me to get back in the chair. Our friend Steve the nurse has him this evening; He started with slight trembling & intermittent twitches about an hour prior to getting his Keppra, Vimpat & Klonopin. Still of Propofol & Levo. Had KUB while I was gone to get Denise & to pick up items @ Walmart - a different NG tube was passed
Denise & I plan to put together some better communication tools etc so we will try those out tomorrow; I'm anxious to see if he can spell his name etc.
Week 3 - off to a great start!!!!!
We have established a designated fund (“Perry’s Transplant Fund”) for those of you wishing to provide financial assistance to cover Perry’s enormous and mounting medical, housing and rehabilitation expenses. We appreciate everyone’s concern and generosity in this time of great need. Any amount that you can give would be a huge support for Perry and his family. Every little bit helps!
You can make credit card donations on the "Donations" tab above. Checks can be made payable to “Perry’s Transplant Fund” and can be sent to the following address :
Perry's Transplant Fund c/o Nick J. DiGiovanni
22050 Coriander Lane
Frankfort, IL 60423
Thank you all again for your prayers and continued support to this point and all future well wishes to come. Perry and his entire family truly have a tremendous support group!