According to Tracy’s night shift morning report, Perry had a good night overall. The patient in next bed required lots of acute care interventions during the evening before we left & throughout the early morning, so he slept intermittently. He was awake @ 430a for a bit & she reported he had been rather alert & responsive. He has been asleep most all of today. The circuit for his dialysis clotted as he is not receiving a blood thinner & thus his blood in the circuit had to be discarded. His hemoglobin had been in the 8’s but decreased to 6.6 & at the next lab draw it was 6.2 so he needed to receive a unit of blood when we arrived this morning.
There is concern related to his prior & concurrent muscle mass loss & atrophy given that he has had to remain in bed on his back with only slight position tilts due to the chest tube drains since July 27 with the only exception being when he was up in a chair for ~1/2 hour on August 4 & 5. He has not been able to have more vigorous physical therapy to maintain his lower extremity muscle tone & strength due to the IV & dialysis access sites on both sides of his groin. We are working on plans to allow him to be out of bed to decrease skin breakdown & begin to develop muscle, strength & tone.
Perry was incontinent of urine during night & this morning so it is uncertain if its due to brain injury, muscle atrophy or otherwise. It is good that he is making urine, but not good that he was incontinent. The nephrologist plans to discontinue the current mode of dialysis the next time the dialysis circuit clots, discontinue the dialysis access site in his groin, have a different access site established in his upper extremities, & then start him on a more conventional intermittent mode of dialysis tomorrow which will increase his mobility & allow him to be up into a chair. In hindsight, I had noticed that he had drawn his hand upward perhaps in an attempt to signal the need to urinate. I asked if he had felt the need to urinate to which he nodded “yes” so I’m hoping that once he is able to communicate the need in the future, this issue will be resolved.
All of his physicians agree that he continues to show progress & time is our friend. Thank you for the many prayers, gifts, & donations in honor of Perry. We so very much appreciate your underwriting of his intensive care.
We have established a designated fund (“Perry’s Transplant Fund”) for those of you wishing to provide financial assistance to cover Perry’s enormous and mounting medical, housing and rehabilitation expenses. We appreciate everyone’s concern and generosity in this time of great need. Any amount that you can give would be a huge support for Perry and his family. Every little bit helps!
You can make credit card donations on the "Donations" tab above. Checks can be made payable to “Perry’s Transplant Fund” and can be sent to the following address :
Perry's Transplant Fund c/o Nick J. DiGiovanni
22050 Coriander Lane
Frankfort, IL 60423
Thank you all again for your prayers and continued support to this point and all future well wishes to come. Perry and his entire family truly have a tremendous support group!