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Posted 2015-08-25T04:01:00Z

August 24, 2015 This Is the Day the Lord Has Made

Cat, last night's shift RN, reported that Perry remained restless & was up until 5a. I received call from Dr @ 733a to receive consent to place femoral arterial line in his L thigh as yesterday with all of his fidgeting & frequent movements the L radial arterial line was compromised. Perry is also L handed so it was very difficult for him to avoid using his L hand/wrist. The tunneled access line ended up being placed in his R femoral artery on his R upper outer thigh.  The line was placed so that TPN (Total Parenteral Nutrition) could be given & later for use for additional medications & monitoring. Due to Perry's previous systemic yeast infection, TPN is not the preferred feeding method, although not having had nourishment for several days, it was decided that until he has the jejunostomy surgery on Wednesday that TPN should be started. Because the TPN solution is specially made for each patient's needs, it will not be available until 10p this evening. He began today's 3 hour dialysis @ 1035a. After dialysis, two chest tubes were removed without complications, received a shampoo & bath & then had Physical Therapy. The Physical Therapist was impressed with Perry's arm & leg strength & is planning to allow Perry to sit on the edge of the bed & try standing in the near future. He was transferred to sit up in the chair & switched to CPAP vent settings & was able to nap. Upon his transfer to bed, he slept a bit. This evening he received some Melatonin to aid his sleep tonight. Perhaps from exhaustion, he was not able to correctly tell me where he was or the year, but he knew his name & repeatedly answered "Misty DiGiovanni" to several questions. Later he asked me how the boys were & seemed rather worried about them both, so FaceTime provided reassurance that they were both okay & he winked & waved at Kim too. He then asked me, "What do you want from me?" My answer was for him to get a good night's rest, a big kiss & the okay for Denise & I to leave by 10p so we too could get a good night's rest. Perry being Perry then nodded & mouthed okay, gave me a kiss & closed his eyes almost immediately. Wishing you all a restful night. Please continue to count your blessings & say prayers not only for Perry but also for Perry's donor & the donor's family too. It has been 4 weeks today since Perry received the gift of life & his donor's heart & lungs have miraculously met every single challenge the last 4 weeks have brought & are they are just as determined as Perry has been throughout his entire life. God works in very mysterious ways. We are eternally thankful for the gift of living organs & that God has answered prayers that have gotten us to & through today!!! God bless all of you!!!!

 

We have established a designated fund (“Perry’s Transplant Fund”) for those of you wishing to provide financial assistance to cover Perry’s enormous and mounting medical, housing and rehabilitation expenses. We appreciate everyone’s concern and generosity in this time of great need. Any amount that you can give would be a huge support for Perry and his family. Every little bit helps!  

You can make credit card donations on the "Donations" tab above.  Checks can be made payable to “Perry’s Transplant Fund” and can be sent to the following address :

Perry's Transplant Fund  c/o Nick J. DiGiovanni

22050 Coriander Lane

Frankfort, IL 60423

Thank you all again for your prayers and continued support to this point and all future well wishes to come. Perry and his entire family truly have a tremendous support group!

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Comments (5)

  • LINDA  ALLEGRO
    LINDA ALLEGRO

    Good night everyone and pleasant dreams😘

    4 years ago · Reply
  • Dianne Cook
    Dianne Cook

    Oh my gosh. I continue to be in awe of the entire DiGiovanni family...your strength and your faith are simply amazing. Continued prayers and warm hugs coming your way. ❌⭕️ ⚡️ 😘

    4 years ago · Reply
  • Carol Garard
    Carol Garard

    Thoughts, hugs, and prayers for all.🌞

    4 years ago · Reply
  • Joni DeBusk
    Joni DeBusk

    Sure hope the TPN was just what the doctor needed. Sitting on edge of the bed, standing soon, another tube out.....all awesome news. Extra prayers will be flowing on Wednesday. Lots of people praying for all the DiGiovanni family and the medical team taking such wonderful care of Perry, Love and hugs Joni & Ken

    4 years ago · Reply
  • Mary Brewton
    Mary Brewton

    I am also impressed with all your strength and God's grace in answering our prayers! Perry, you keep doing your part and hang in there like the Cubs! Great things coming for both.. LOL

    4 years ago · Reply