August 26, 2015 - After 37 Years We're Still Going Strong With A Little (Actually A Lot) Help from Our Friends & Family
Happy 37 Year Anniversary
Josh night shift's RN update indicated a fairly restful night with IV pain medication & Fentanyl patch & that his "days & nights" of course being off kilter. He underwent dialysis (IHD=Intermittent Hemodialysis) from 930a-1230p. He was not able to be up in the chair today due to yesterday's surgery. During today’s PT (Physical Therapy) session, Dean had him do unilateral leg presses using a Shuttle Mini Press which will assist Perry to be able to stand at a later date hopefully in the near future. He fell asleep while doing his L leg presses. His Respiratory Therapist, Bill, informed me that Perry had been on CPAP since early morning & was continuing to do very well. Bill is hopeful that perhaps by the weekend with increased nourishment & strength, Perry may be able to have his trach capped (off vent) for brief intervals. He began to receive formula via his J-tube (jejunostomy tube) at 1p @ 15 mL/hr. The doctor also wanted to continue with TPN (total parenteral nutrition) via IV for at least another day to help boost his nourishment & gain more strength.
He was able to give a few "real" smiles & several puckered up kisses today as we celebrated our 37th year anniversary of the day we met at an Indiana State University Student Union Dance between Rhodes & Mills Hall. It was my 2nd night on campus & Perry went to the dance to scope out the incoming freshmen. Shortly after eye contact & playfulness was established, this really dark slender, handsome, young man in a red shirt, who had been leaning against the railing & smiling at me (also known as "cool, smooth Perry") asked me to dance. Except for the fact that I was eighteen, "I Saw Her Standing There" pretty much sums it up as well as the song, “Last Time I Felt Like This.” Within the first few minutes of dancing, I had learned he was Italian from Chicago Heights & Olympia Fields, had a congenital heart condition of Transposition of the Great Vessels, had had 2 heart surgeries done by the pioneers of cardiac surgeries & that he had 102 stitches on his open heart chest scar. He told me about his loving parents, 2 brothers, very close & large family & friends back home as well as his Indiana State University Kappa Sigma fraternity brothers. I learned that he absolutely loved music, specifically Rock & Roll, the Beatles, Aerosmith, Led Zepplin, Black Sabbath, The Rolling Stones, playing air guitar, the game of golf, the Cubs & the Bears & the Bulls. I invited him up to "my place" for homemade chocolate chip cookies & Coca Cola…. stay tuned for the rest of the story!!!
For your listening enjoyment: