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Posted 2015-09-02T04:57:00Z

September 1, 2015 - In Need of Restoration

Erica RN informed me that Perry slept intermittently during night with an uneventful night otherwise. According to Jay RN, he was placed on CPAP in early morning & had worked hard during his PT session with Dean. He was able to complete his first set of double leg upward pushes on the Mini Shuttle Press & was rather exhausted shortly after PT. He was pale, & I was informed that his hemoglobin was 7.9 this morning. A Metabolic Cart test was started this morning in order to calculate Perry's energy expenditure & thus determine what his energy requirements are so that an appropriate amount of calories of nourishment are being given. Unfortunately his feeding was turned off during his PT session, & he was touched which is to be avoided during the test so the test will have to be restarted tomorrow. He has continued to remain on 55 mL/hr of Nestle Health Science IsoSource 1.5 calories/mL Calorically Dense Complete Formula Nutrition via his jejunostomy feeding tube. He was only able to do trach collar breathing on 35% oxygen today for ~20 minutes with increasing labored abdominal breathing resulting. Since he took in a lot of air into his stomach, he released several long burps & seemed uncomfortable with furrowed forehead & eyebrows after falling asleep almost immediately. Shortly afterward, he was transferred into chair & remained in the chair with varied positioning for ~3 1/2 hrs. I helped him to complete his hand/arm & feet/leg exercises while in chair & this evening as well. His R knee was noted to be swollen in comparison to L knee most likely related to his Rheumatoid Arthritis so some adjustments may be needed during his PT sessions. I asked for the night shift RN, Erica, to relay to this finding to the physician staff & to PT since his Rheumatoid Arthritis medications have not been resumed since transplanted relative to his anti-rejection medications. A foley cath was reinserted this evening so that very accurate urine output measurements can be obtained to determine if his kidneys are indeed improving as at times his true urine output had not been able to be accurate. All in all, a good day with the need to get restorative sleep. His Melatonin was increased to 9 mg from 6 mg last night so I am hoping he will be able to get a good night's rest as well as myself as he asked that I be there at 8a.


We have established a designated fund (“Perry’s Transplant Fund”) for those of you wishing to provide financial assistance to cover Perry’s enormous and mounting medical, housing and rehabilitation expenses. We appreciate everyone’s concern and generosity in this time of great need. Any amount that you can give would be a huge support for Perry and his family. Every little bit helps! You can make credit card donations on the "Donations" tab above. Checks can be made payable to “Perry’s Transplant Fund” and can be sent to the following address :

Perry's Transplant Fund c/o Nick J. DiGiovanni

22050 Coriander Lane Frankfort, IL 60423

Thank you all again for your prayers and continued support to this point and all future well wishes to come. Perry and his entire family truly have a tremendous support group!

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Comments (1)

  • Joni DeBusk
    Joni DeBusk

    Good Morning! It's 7:25AM and I pray both of you had a restful night with some good, deep sleeping. I don't like being up this time of day but I pick up Regina at 8:30AM on Wednesdays for Bible Study. Yesterday sounded like a petty good day. Not sure I could sit in a chair for 3 1/2 hours so hope it has good padding in the seat. Sounds like it is time to fatten Perry up, get more sleep and then it is onward up that hill to recovery road. We will lift you both up in class this morning. Feel all the prayers surrounding both of you. May God keep you in the palm on His hand. Love, Joni & Ken

    4 years ago · Reply