His night shift RN Tracy informed me that Perry slept fairly well during most of the night awakening intermittently for brief intervals & was up for the day around 430a. He will have dialysis today as his BUN, creatinine, & potassium are elevated. His abdominal distention increased further during the night so another abdominal KUB X-ray was taken with mostly air seen. His abdomen is about the size of an 9 month pregnancy for a comparison, so unfortunately it makes breathing significantly harder for him, depletes his energy, & decreases the timeframe he is able to tolerate being off the vent. Another KUB X-ray will be repeated Friday morning & if the air has increased or stays the same, an NG (nasogastric) tube will have to be placed to help release the air. I slept in a little bit later this morning for some much needed rest, so prior to my arrival the Metabolic Cart & his PT & OT (Occupational Therapy) session were completed. The Occupational Therapist saw me making coffee in the lounge area before heading to his room, & she agreed that we should be trying to get him to reach for & place objects in my hand to try to help develop his hand & eye coordination & target accuracy. His bed was converted into a chair instead of being moved to the bedside chair upon completion of PT in order to conserve energy for dialysis. He was able to tolerate trach collar breathing for ~45 minutes in early afternoon. I worked with Perry on reaching for a baseball & then a foam block for about 20 minutes which was extremely hard work for him requiring much focus, concentration, energy, & lots of praise & encouragement to keep trying. Nick & Michael called & gave even more encouragement. I was able to read to him many of the cards he has received & showed him pictures posted by his beloved coworkers on PostHope too which brought both smiles & a few tears too. I am anxious to get to read posted comments to him & see all that I have missed too as we both gain energy & few free moments together. He mouthed several times to me today, "When will I get to say 'I love you?' " which melted my heart. The RT said he will try to give him the opportunity to speak a few words tomorrow if he was doing well enough tomorrow. Needing to lift his spirits with that answer, I told him in the meantime that he could tell me "I love you" with his eyes - which at least brought a smile out. His dialysis was for 3½ hours ending at 630p followed by an evening bath. He then received a FaceTime call from Jim & sister-in-law Diane. By 8p, he was ready to go to sleep, & he told me to go get some sleep too so that I could be there at 730a. It's been a long day.
We have established a designated fund (“Perry’s Transplant Fund”) for those of you wishing to provide financial assistance to cover Perry’s enormous and mounting medical, housing and rehabilitation expenses. We appreciate everyone’s concern and generosity in this time of great need. Any amount that you can give would be a huge support for Perry and his family. Every little bit helps!
You can make credit card donations on the "Donations" tab above. Checks can be made payable to “Perry’s Transplant Fund” and can be sent to the following address :
Perry's Transplant Fund c/o Nick J. DiGiovanni
22050 Coriander Lane
Frankfort, IL 60423
Thank you all again for your prayers and continued support to this point and all future well wishes to come. Perry and his entire family truly have a tremendous support group!