Share. Connect. Love.

Posted 2015-09-10T04:35:00Z

September 9, 2015 Go God Go!!!!

Indu RN reported that Perry was restless with agitation/frustration during the night but denying pain with brief nods as he kept his eyes closed. She continued with ointment to rash & Benadryl without much relief. Fentanyl was given this morning in attempts to relax him. Another abdominal KUB X-ray was taken this morning due to continued distention & watery stool drainage from the fecal management system. It was decided that a NG tube would be passed to rid air & gastric secretions. Nourishment with TPN continued, & he was also started back on formula @ 20 mL/hr. Upon my arrival this morning, Perry was asleep without responsiveness to my voice but Summer RN said he had been able to follow commands & nod to questions in early AM. He was being hooked up for another video surveillance EEG. Neurology did not contact me at any time today. He has continued being given Baclofen 10 mg for the twitching/jerks which he does not typically have in a sleep state. He did not have any breathing challenges today as he slept the entire day opening his eyes for only a brief second to my voice in the afternoon. He still has the one Blake chest tube in but is able to sleep on his side appearing comfortable when at rest. During his PT session, Perry was at times participating with activating some of the leg movements. Dean, Tina & I were able to sit him upright at the edge of his bed for ~10 minutes which he seemed to tolerate fairly well but kept his eyes closed & appeared to be asleep with an occasional self movement of his head & shoulders. He had a furrowed brow throughout most of the day. The NG tube was passed @ 3p with lots of air & green bile drainage. Nephrology did not need to dialyze him today as he was making sufficient amounts of urine & his labs were stable. He currently has no edema (swelling) to any of his extremities so his hands, arms, & legs are very frail in their actual "true" state with further muscle atrophy even more apparent. My family had recommended that I go to the weekday yoga session for transplant patients & their family members & possibly go see the movie, War Room, with Karla the wife of Bob who next to Perry's room. Since I needed to get groceries, she & I went to Costco in Strongsville OH & then to the 7p showing. We both needed to get away & cry at the movies - plus treat ourselves with some really good theater popcorn & pop. The movie was good for the both of us, & we were ready to go back to the battleground of the J5-5 CVICU to tell the devil to go back to Hell where he belongs because Jesus Christ is the Master in our husbands' rooms & lives. Chad RN had said that he was glad I was coming to visit as he was just getting ready to call me. Perry had been very restless once again, pulled out his NG tube partially & attempted to pull out his trach, arterial line, & urinary & rectal catheters so he had to be placed in soft restraints to protect him & prevent him from causing harm. He had to be given Haldol to also calm him down. He was not responsive to commands or my voice. I declared out loud several times that we weren't going to take any more crap (well I did say another word too) from the devil, & he was to go back to Hell where he belongs because Jesus Christ is the Master in Perry's CVICU room & our lives!!!! Go God Go!!!!! We have established a designated fund (“Perry’s Transplant Fund”) for those of you wishing to provide financial assistance to cover Perry’s enormous and mounting medical, housing and rehabilitation expenses. We appreciate everyone’s concern and generosity in this time of great need. Any amount that you can give would be a huge support for Perry and his family. Every little bit helps! You can make credit card donations on the "Donations" tab above. Checks can be made payable to “Perry’s Transplant Fund” and can be sent to the following address : Perry's Transplant Fund c/o Nick J. DiGiovanni 22050 Coriander Lane Frankfort, IL 60423 Thank you all again for your prayers and continued support to this point and all future well wishes to come. Perry and his entire family truly have a tremendous support group!

Stay in the know. Sign up to receive email notifications the moment new Journal entries are posted

Comments (5)

  • Diane Kissinger
    Diane Kissinger

    Hang in there Misty! I'm glad you were able to get away for a bit. You need to stay strong for Perry--you are an amazing team! 😘

    4 years ago · Reply
  • Denise Witt
    Denise Witt

    Amen, Sister! Love you, Misty! Praying for you two & for all of the Cleveland Clinic Caregivers J5-5 CVICU. Praying also for our dear donor's family & friends. Thankful for Our Father's reminder to us - His Children - in Isaiah 41:10 "So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand."

    4 years ago · Reply
  • Sabrina Vincent
    Sabrina Vincent

    Glad for you that you were able to see what I hear is a great movie! Grateful for your faith and that you boldly call on the name of our Lord! Prayers continue- know we support you- we love you- and we go before Him asking continued blessings to you and Perry.

    4 years ago · Reply
  • Dianne Cook
    Dianne Cook

    Oh dear. The struggles are ever present but he continues his admirable fight against each obstacle. My father in law passed away and we had his funeral yesterday. I prayed for Perry and his family so much. Hoping and continued prayers for a positive report tonight. God's blessings to all of you. ❌⭕️

    4 years ago · Reply
  • Mary Brewton
    Mary Brewton

    Misty, Perry and Family, Let your Faith sustain you, you are continuously in our Prayers. " Nevertheless, I will bring health and healing to it; I will heal my people and will let them enjoy abundant peace and security.” Jeremiah 33:6

    4 years ago · Reply