With Propofol titrated up to 15, Perry had a few episodes of restlessness & agitation during the night according to Rachael RN but did sleep for a few solid consecutive hours. Thank goodness Ryan notified me today that it was Week #1 of football, & I needed to download the NFL Sunday Ticket app on my iPad so that his father could be tuned into the 1:00 ET Bears vs the Packers game. Upon my arrival today, he had been taken off the EEG video surveillance. Summer RN had him pretty well confined in bed with extra pillows added along the lower portion of his bed to prolong his escape attempts as she was slowly weaning him off the Propofol & was down to 15 mcg/kg/min (6.1 mL/hr). Although he kept his eyes closed, he was able to respond to my questions with nods. He nodded "yes" that he wanted to listen to the Da Bears game🏈 - all huge "First Downs" compared to the last 4 days & previous lack of interest in the winning Cubs!!!!!!! He acknowledged that he was having pain related to the FMS (rectal catheter), that he was hot, & that he felt like he was running a fever. He was receiving a unit of blood for a hemoglobin of 6.1. His temperature was 37.3 C = 99.14 F which pre-transplant would be a fever for him for his normal baseline & heart rate in the 110s/minute. He was not converted to CPAP today to give his body a rest. With the Bears & the Cubs game losses today, it was probably good that he was no longer connected to the EEG. He was able to remain calm today with being weaned off the Propofol. Formula feeding rate was increased to 65 mL/hr without TPN infusion. Guaiac test for blood in stool was negative. Early part of day his abdomen was soft & non-distended. He began burping a lot ~435p, suddenly pale, & able to nod "yes" to being nauseated & having pain. He had lots of rumbling in his abdomen, so I comforted him with my hand warmth & gentle counterpressure & bent his legs so he could push against my chest. He was definitely STRONG with his pushes!!!!!!! So we did cold cloth to his forehead & leg pushes until pain subsided with anti-nausea medication given & his feeding turned off. He then began to mouth words & opened his eyes briefly. He then opened his eyes for longer periods & was able to answer that he was Perry & at the Cleveland Clinic. He mouthed, "I know why I'm sad" to which I provided him updates related to what was bringing him sadness. He then opened eyes to look at me & Summer & was able to track me as I moved to other side of his bed. He mouthed @ 510p that he wanted to call Sam but then quickly fell back to sleep. I called them on his next episode of alertness - he mouthed question but couldn't get it at the time. He rested calmly & quietly without fidgeting & escape movements most of the afternoon. He experienced intermittent abdominal pain with increased abdominal distension with the need to remove his FMS as it was not properly draining liquid stool. He then was doing well but started getting agitated with frequent fidgeting & leg escape attempts just before I was preparing to leave mouthing "Get me out of here" & began pushing me away. He was given Haldol IV & then began to rest & then sleep calmly without the Propofol being given at my departure.