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Posted 2015-09-15T05:09:16Z

September 14, 2015 - The Start of Week 8 Post-Transplant

He slept fairly well last night. He did not have to receive any Propofol to settle him down, but he did receive Haldol to keep him calm & confined in bed as well as the use of soft restraints. He had PT prior to my arrival today & was assisted to sit upright on the side of his bed which I'm sure felt good!!!! It took him awhile to open his eyes for me today, but he did on several occasions throughout the day & at times he was mouthing a few sentences. I asked him to look over at the mirror to see the blue sky which he did. When he was & wasn't lucid, he was still trying to get those legs over the side of the bed to get a clean break & became very upset according to his facial expressions that his legs were placed back in bed each time. His formula feeding rate was decreased to 30 mL/hr all day & they were contemplating whether to pass an NG tube due to abdominal distension & bouts of nausea which occurred Sunday evening. It was not placed while I was there today. He was able to communicate to me this evening that he needed to use the bedpan which is great progress & will certainly help to keep the FMS (rectal catheter) from being inserted. He may have tried to inform the staff on the 2 other occasions that he may have needed to be placed on the bedpan while I was absent from his bedside. I'm glad that I can pretty much figure out what he's mouthing as many of the staff do not have any idea what he's trying to communicate. I will continue to insist that he be provided with the adaptive call light switch as dignity is an extremely important aspect of his recovery & everyone's!!!!!! Since his "reawakening" episode yesterday, I am not noticing the same amount of hand/arm or feet/leg shaking & tremoring that was previously present. I am so praying for him that with the current medications, he will be able to have improved hand/arm control, coordination, & dexterity to be able to use other adaptive methods of communication which would allow him to progress rather than regress. His BUN increased to 64 & potassium to 6.2 this morning most likely due to having been given the blood yesterday according to the nephrologist, so he underwent 3 hrs of dialysis this evening. The lung physician said his hemoglobin levels are still remaining low most likely because his kidneys are not secreting erythropoietin which is a hormone that increases the rate of production of red blood cells in response to falling levels of oxygen in the tissues. Overall, today was another progressive day of which to be thankful. The heart & lungs are doing great as he starts on week #8 post-transplant. If you would like to participate, family members have selected a novena to St. Therese of Lisieux on behalf of Perry. I would also like for you to include in your stated intentions the donor's family & friends who have been grieving their loved one for 8+ weeks. A novena is a devotion consisting of prayer for 9 successive days asking to obtain special graces. The practice of saying novenas is derived from Scripture. After Jesus's Ascension into heaven, He told his disciples to pray together in the upper room and devote themselves to constant prayer (Acts 1:14). Doctrine proposes that the Apostles, Blessed Virgin Mary, and other followers of Jesus prayed together for nine consecutive days, concluding in the descent of the Holy Spirit on Pentecost. Novenas are most commonly addressed to: Jesus, The Blessed Trinity or any individual person, The Blessed Virgin Mary, Saints, Angels ( Dearest Saint Therese of Lisieux, you said that you would spend your time in heaven doing good on earth. Your trust in God was complete. Pray that He may increase my trust in His goodness and mercy as I ask for the following petitions (State your intentions) Pray for me that I, like you, may have great and innocent confidence in the loving promises of our God. Pray that I may live my life in union with God’s plan for me, and one day see the Face of God whom you loved so deeply. Saint Therese, you were faithful to God up until the moment of your death. Pray for me that I may be faithful to our loving God. May my life bring peace and love to the world through faithful endurance in love for God our Savior.

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Comments (2)

  • Joni DeBusk
    Joni DeBusk

    I am Methodist but a good prayer warrior and I do pray not only for Perry but for you. It is safe to say that my entire church prayers for both of you every single day. You are a very strong woman for faith and exactly the right spouse for Perry. You are equally yoked and your meeting at that dance was definitely a God thing. Thankful for a better day yesterday, praying for even more forward steps today. E-Hugs and tons of prayers. Love, Joni & Ken

    4 years ago · Reply
  • Cathy McIsaac Branigan
    Cathy McIsaac Branigan

    We continue to pray for all of you and conitue to ask our Augustinian priests to keep you in their prayers. I will be with my Mercy nuns on Sunday and will ask them to include Perry and all his loved ones.Love , Cathy

    4 years ago · Reply