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Posted 2015-10-01T05:24:00Z

September 30, 2015 & Early Morn of October 1, 2015

Lora RN's night shift report was that it was an uneventful night for Perry. Due to an intense medical emergency/code on J5-5 lasting ~3 hours, I was not able to go back to be with Perry until around noon. The message that I was here & had been here since his requested time was relayed by the chaplain, Brent, as Perry becomes very anxious if I'm even a couple of minutes late. It is extremely hard waiting & wondering when you're in the waiting room with all of the tears shed by family & friends. And it's so sad when a person dies without a loved one nearby. I recognized that the unit's housekeeper, Jackie, who says it is her calling "to clean & pray, that's what I do, just clean & pray" needed a big hug when I finally got to come back. She helps me count my blessings, prays for "Mr. Perry" & me, & is as sweet as can be & has been a constant for me & Perry with smiles & some laughter too. She stood beside me on 8/5 & prayed when there wasn't much more that I could do other than to pray.... after Perry's eyes gave me a final "I love you" before his pupils went pinpoint, his hand grip went limp, & he became unconscious. She does A LOT of cleaning & praying here!!!!! And for those who need to know that they are loved in their final moments, she's on the sidelines praying for them to feel love, comfort, & peace as they depart to a place of true healing!!!!! I reached out to one of the dear ladies I met whose sweetheart lost his battle here a few weeks ago. On Friday another couple of friends who were our next door neighbors in J5-5 will be departing for their home as he's progressing well after his lung transplant. He had said to me that Perry had told him, "Man, we've got to get out of here!!!!!!" I didn't tell his wife until after her husband was transferred out of the unit that he was in the same room that Perry had his complications in & that 2 other persons had died in the day & night before Perry had been transferred to Room 7. I could not dispel that Perry had not said to him, "Man we've got to get out of here!!!!!!" Dean PT had been able to accomplish a very extensive 1 hour session with Perry according to his day shift RN, Audra. He felt much more at ease soon after I comforted him & was able to take a nap. He was transferred to chair at his bedside by lift team @ ~140p & began trach collar breathing starting @ 150p. He was ready to give up by 240p but due to another medical emergency/code called in the room next to us, I needed to do a lot of comforting & convincing that he was doing great, which he really was, until his RT was able to be with him. The doctor was elated to know that he held on & was able to manage the 1 hour goal that he wanted him to do. He fell asleep immediately after going back onto the vent. He also was able to tolerate being up in the chair for much longer with the gel seat cushion & step stool that I purchased as well as attaining a much better posture adding all of the extra supports. His OT session was held as Perry was too tired to be able to participate. Dr. Udeh stopped by to see Perry in the early evening. Perry asked when he might be able to attempt to speak again. Dr. Udeh suggested that perhaps if he can continue to manage trach collar breathing as well as he has been doing by striving for a little bit longer each day that maybe by our anniversary he could venture out of his room for a short bit & also attempt using the Passy Muir Valve. He plans to talk with the team of Drs to help facilitate the progression of the use of the Passy Muir & at the same time is also helping Perry to set goals as an athlete would. He's a great encourager & is a true bedside physician for Team Perry!!!! We got to hear from Char & Sam this evening & learned that they are both doing pretty well which put our minds at ease. He tuned in for a portion of tonight's Cub game before falling asleep. He began to arouse shortly after the game & was becoming rather fidgety. He asked for me to stay. Lora RN took over his care from Melissa RN @ 11p. He had remained asleep & still until just a few minutes ago (150a) & when I asked if it was okay for me to go he nodded "no" & he's had a furrowed brow intermittently, so I'll be staying right here with him. He also then whispered "cold" with enough breath that although without a voice, the word was definitely heard so I asked him to repeat it & the same thing happened. A change. I do not hear an air leak from around his trach & alerted Lora. We have established a designated fund (“Perry’s Transplant Fund”) for those of you wishing to provide financial assistance to cover Perry’s enormous and mounting medical, housing and rehabilitation expenses. We appreciate everyone’s concern and generosity in this time of great need. Any amount that you can give would be a huge support for Perry and his family. Every little bit helps! You can make credit card donations on the "Donations" tab above. Checks can be made payable to “Perry’s Transplant Fund” and can be sent to the following address: Perry's Transplant Fund c/o Nick J. DiGiovanni 22050 Coriander Lane Frankfort, IL 60423 Thank you all again for your prayers and continued support to this point and all future well wishes to come. Perry and his entire family truly have a tremendous support group!

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Comments (1)

  • Dennis G. Barker
    Dennis G. Barker

    Having BEEN THERE, "A WALK ON THE BRIGHT SIDE!" Life's endeavors, and our associations make us who and what we are, But it is only by the grace of God, Thru his son Jesus Christ that as this mortal vail of tears is lifted that we will finds it's rewards. Taking the easy way, whether it be in Marriage, working, daily living or relaxation pursuits, is neither good for the Body, nor the SOUL. We are required to give of our best. How many restless nights have followed after a day that did not include your best efforts? Best Efforts Gain The Best Results, in and for life, Now and the hereafter! Keep Up The Fight, You're Winning! Go GOD Go!

    3 years ago · Reply