Rachael RN’s call this morning indicated he had a restless night otherwise an uneventful night & would be starting dialysis ~730a.
Upon my arrival, he had just been started on 4 hr dialysis session with a completion time of 1130a & plan to remove 2.5-3 liters of fluid depending upon his BP & toleration as well as blood cleansing of toxins. After dialysis, he rested for a short bit. Cat day shift RN & assistant dangled him shortly after dialysis. Later as being placed in chair mode, he experienced nausea & dizziness which eventually abated with Zofran for the nausea & repositioning him & cold cloth. PT completed some basic leg strengthening exercises for a short session.
After his nausea & dizziness subsided, he tolerated a 15 minute episode of trach capping with significantly less nasal flaring & much more relaxed breathing in comparison to his previous trach collar breathing. Several staff were in & out of his room during capping & were thrilled to hear his voice. “Happy Anniversary” was said as well as Perry asking lots of questions trying to establish a plan with Margaret, his RT today, so that he could have more successful progress & wrap his mind around what he needs to be more successful. We reinforced how hard he had worked in that 15 minute session & that he is not expected to talk but a few words if he wanted to do so. Margaret was very pleased with the capping session & willing to work “with Perry” & listened to what I had noticed seemed to be more successful & less labor intensive for Perry during the last 3 days of more successful sessions with Matt RT. Of course, being relieved of 2.5 liters of fluid with this morning’s dialysis facilitated a successful capping too.
We were surprised with a cake & group card for our anniversary by the staff, & we were wished a “Happy 31st Anniversary” by several staff as the day progressed. The staff got to enjoy the cake minus 2 pieces. Laura, the music therapist was “instrumental” in playing guitar & keyboards as she played & sang several songs from our wedding which brought many smiles & of course tears as we reflected upon being given the chance to have “today” to celebrate another “Happy Anniversary!!!”
Perry remained awake although tired throughout the remainder of the evening & was ready to go to sleep by 9p. Jackie, his night shift RN who will be running in the Chicago Marathon this weekend, will do what she can to see to it that he gets a good night’s rest to watch the Cubs game tomorrow night @ 8p.
We are both so very thankful to celebrate our 31st wedding anniversary as this day would not be possible without putting our faith & trust in God & in each other. Thank you all for the many blessings, prayers & support & love that you bring to us. Thank you to our donor & the donor's family for sharing a heart with which to love again & the lungs that allow the breaths that sustain his life with me & our family & friends.... from the bottom of my heart, thank you!!!! Love, faith, & hope....the greatest of these is love.....