Morning update call from Jackie RN indicated that Perry slept very well during the night & was still sleeping @ the time of her call. She replaced his Foley catheter (drains urine) as it had continued to leak intermittently for the last 3 days. The new catheter also began to leak, so she contacted the doctor. I have been repeatedly mentioning for ~1 month that he has most likely been having bladder spasms based upon his complaints of the feeling of not being able to urinate & due to noting very small amounts of urine output followed by large bursts. Finally the problem is being addressed & the medication Ditropan was ordered.
Upon my arrival this morning, he was awake & Cat RN said he slept until 830a!!! Continued back & forth discussions occurred regarding exactly who was to do his trach change. Patients are typically extubated & out of the CVICU so his trach change had been overlooked until I continued to pursue it. Supposedly first change is done after 30 days of initial placement & must be done by the physician team who inserted it. Finally it was decided that Dr. Marsh, Cardiothoracic Anesthesiology & Surgical Staff Intensivist would be the one to complete the trach change. This afternoon it was finally changed. He then was taken for a chest CT scan to have a comparison of a previous chest CT scan to determine if L lung pocket of fluid has improved. He did not undergo any trach capping today.
I was treated to a delicious lunch at Gamekeeper's Taverne & then to my first professional hair coloring & haircut at Accents Salon & Spa in Chagrin Falls by new friends, Lois & Pam, both members of Parkside Church whose pastor is Alistair Begg. Mom stayed with Perry & was able to witness a combined Physical & Occupational Therapy session during which Perry was assisted to a standing position twice with their help. Perry has continued to have increased tremors to arms/hands & feet throughout the day which troubles him. He seemed pleased with my new "do." He rested for a short bit during the evening & although tired was awake the majority of the day. He was ready to tune in to the Cubs pre-game by 7p. It was the first Cubs game we were able to watch on the big screen & not via computer. Unfortunately, he was given his evening meds which increase his drowsiness, so he was pretty much asleep except for frequent requests for me to provide repetitive oral suctioning & desired trach suctioning & maintaining comfortable body warmth/cool off. He was able to acknowledge with a brief eye opening that the Cubs won against the Pittsburgh Pirates 4-0. "Cubs win, Cubs win!!!!! Holy Cow!!!"
Yesterday, mom & I toured the Rehabilitation Unit known as M 80 to learn more about the unit & whether I will be able to stay with him in his room. They welcome family to stay & visitation is 24 hours. It is a brightly lit unit. He will not be able to be discharged from the CVICU to the Heart/Lung Transplant Unit also known as J 82 until he has been able to be off the vent for 48 hrs consecutively. Once Perry is able to tolerate being able to go through 3 hours of therapy/day, he will then be transferred to M 80.