Share. Connect. Love.

Posted 2015-10-19T05:57:34Z

October 18, 2015 - Sunday, A Day of Rest & More Progress

Uneventful night with more of the same activities as in recent nights except that I know I did a lot of talking in my sleep & screamed out which was confirmed by Perry. We both were given mercy & able to sleep in a little longer by his day shift nurse Brandon RN. Dr. Kotloff visited & reinforced the plan to have an EMG of the diaphragms with phrenic nerve stimulation done sometime this week. With it being the weekend, the procedure will have to be scheduled tomorrow. Depending on the findings, the Pulmonology team may be referring to a physician at Case Western University who is versed with diaphragmatic pacers as to whether Perry may be able to be considered for such as typically they are used for patients with spinal cord injuries. Nephrology physician came by & the plan will be to do dialysis on Tuesday. I informed him of Perry's BP having remained low throughout all of yesterday post-dialysis & dehydration as his skin had sunken considerably between the bones in his hands. Perry was able to accomplish 2 trach cappings today on 4 liters of oxygen via nasal cannula. His first attempt was for 54 minutes (1101a-1155a) & his 2nd attempt for 55 minutes (553p-648p). Absolutely awesome!!! He remained calm & kept his eyes closed to focus on his breathing on both occasions. His hands became just a little dusky with pinkish purplish/blue tone color on each trial but his oxygen saturations remained 96%-100%. He was able to rid a lot of post nasal mucous with trach cuff deflation at the beginning of each capping. We were able to get the 2nd half of the Bears game due to technical difficulties with NFLDirect Sunday streaming but at least he got to see part of the Bears vs Detroit Lions game. He demanded that I rest on his bed beside him while he was sitting in the recliner during his 2nd trach capping. I kept an eye open & provided lots of praise & it was so nice to get to be a little closer to him. He did notice a little bit of a difference during the cappings with having drained off the 300 mL of serous drainage (total) since the pigtail chest catheter was inserted. He was back into bed with the help of 2 nurses & me by 725p. He got in a nap prior to the start of the Cubs game vs the New York Mets @ 8p. He has continued to have shaking of hands/feet but not quite so extensive as yesterday, & he had lots of shaking to his trunk as he dangled on the edge of his bed before being assisted to stand pivot transfer into the recliner. He fell asleep by the 6th inning, but I kept the TV remote by his head so he could hear the game. All of you in Chicago better cheer the Cubs on to victory over the next several days!!! We hope to continue to make progress here in J5-5 this coming week. Thank you all for the ongoing love, prayers & support!!!!

Stay in the know. Sign up to receive email notifications the moment new Journal entries are posted

Comments (1)

  • Dennis G. Barker
    Dennis G. Barker

    The "Comeback Kids" are hard at work at CC (Cleveland Clinic) and winning the battles, now it's time for the other CC Team (Chicago Cubs) to have another 7 game Winning Streak! Go Teams Go! We don't want Back To The Future to be wrong! Hey it's all in Gods time, but for certain, life is full of rewards!

    4 years ago · Reply