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Posted 2015-12-23T08:31:34Z

Post for December 22, 2015

Brief update:  Perry's feeding was stopped at midnight in preparation for the placement of a neck central line access for dialysis & other purposes to be done at ~10a.  The procedure was postponed @ 10a until ~1p.  At 1p, the procedure was postponed for later in the day.  By 930p, the intensivist came to inform us that the lack of availability of an anesthesiologist for Perry's procedure is what caused today's delay & postponement due to the many other surgeries that had been scheduled & still waiting to occur as well as emergent procedures that needed to be addressed today.  His feeding was resumed at 30 mL/hr & will be held again after midnight in anticipation for the possibility of the procedure on Wednesday. 

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Comments (2)

  • Joni DeBusk
    Joni DeBusk

    Hurray up and wait. Praying that the procedure for the new central line will take place today without a problem. I am now able to get on your FB page and see your videos. How awesome is modern technology to put people right into Perry's hospital room and allow us to watch his progress instead of just reading about it. I had to chuckle when Perry was doing the finger exercises and appeared to be sleeping yet doing as requested. You guys are always at the top of my prayer roll. Praying that 2016 will be a much better year for the both of you. E-hugs and tons of prayers. Love, Joni & Ken

    4 years ago · Reply

    Well Misty I am not very good at writing, I really want to express just how I feel about you and Perry and all you are going thru. I wish I was able to hold the both of you and give some big hugs & kisses. I keep praying for you both everyday. LOVE YOU BOTH PEPE

    4 years ago · Reply