Perry’s body has undergone so much over the last 56 years & especially during the last 6 months post-transplant. He has given it his absolute all each & every single day of his life & unfortunately his body & strength have been wearing down & weakening for quite some time. This morning, Dr. Mehta talked with me & at this point he (the team) doesn't think/feel that putting Perry through the diaphragm pacer procedure will prove to have benefit at this relative to the degree of atrophy of his diaphragms & not having seen effective results in cases of such degree of atrophy. He said I'm not to bear or have any burden of guilt for how things have turned out that they will do that & that they are deeply saddened. In his words, he will require a miracle. He said he has witnessed miracles with Perry as he & the team never expected him to live past the events which occurred on 8/5/15. I love Dr. Mehta & I trust him.
Perry has decided it is time soon to be with his Holy Father, & he has asked me to honor his wishes. He was able to do the same with our sons & his brothers in the previous weeks.
Dr. Mehta came in this evening & explained the dying process to Perry & the plan to provide him with comfort measures. He will no longer receive dialysis. No labs will be drawn. He will take him off all unnecessary medications & keep him on his anti-rejection medications & prednisone. He will be started on a morphine drip, & see to it that he has no pain throughout his dying process. They are NOT going to take him off the ventilator as it would be too distressing, but they will not make any ventilator pressure changes. He will continue receiving formula feeding. Perry understands & is aware of all of the above & is in agreement. It will most likely be ~48 hr-4 day process unless God should reveal another miracle for Perry.
He loves & has loved each & every one of us. He does not want to leave us, but he will greet us all when it’s our turn to be called. Thank you each & every one for all of the prayers, love, & support you have shown to Perry, me, our families & to all of the staff involved in Perry's care. Our prayers, love, & support will follow each of you on your life's journeys as well. We will forever be grateful to his donor & his donor’s family for having given us several more moments of life & time together that have been so precious & cherished. This will be even harder for them, & I ask that you keep them in your prayers as well. Keep the faith & continue to believe that God's will be done on earth as it is in Heaven.