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Posted 2015-11-26T04:41:00Z

Post for November 25, 2015

Perry was awake almost every 45-60 minutes throughout the night due to continued watery stool leakage around the FMS, need for extremely gentle cleaning, repositioning, & applications of extremely thick coating layers of Cleveland Clinic Skin Protectant Paste to treat & try to prevent further skin breakdown.  Fiber supplements were administered to help bulk up the consistency of his stools; however it will take several days before those effects will be seen.  The weekly Wednesday post-transplant nasal swab for Staph Aureus was obtained by Jennifer RN.  She planned to check with Dr. to have the order discontinued as it is intended to be obtained while the mediastinal chest incision is still healing & since Perry’s healed very quickly, there’s no indication to continue.  His morning lab draws from his L groin Trialysis catheter were with a sluggish blood return.  Jennifer RN checked with Audra RN to inquire about how recent blood draws had been from his Trialysis catheter, & she informed her that she has had to place Perry’s leg in a few awkward positions to get a blood return so it seems to be positional.[...]

Posted 2015-11-19T09:33:00Z

Post for November 17, 2015

In addition to awakening intermittently for oral & trach suction & position changes, Perry was up at least 4 other times during the night needing to be placed on the bedpan according to Nate RN. Unfortunately his abdomen was significantly more distended & rather firm this AM with no complaints of nausea or vomiting. No fevers during the night & all other vital signs within normal limits.[...]

Posted 2015-11-17T09:57:38Z

Photos for November 16, 2015

In remembrance of Perry's mother & my mother-in-law, Doreen. She's been missed here among us all for 11 years as of this evening but she's watching over us all & bringing us all together when the moments are right. We miss you!!! Love, Perry & Misty