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Peter's Journey

This site is where we will post updates for Peter as he fights a neurological autoimmunity syndrome. Peter is 10 years old, he was a very delightful and inquisitive child[...] read more

Latest journal entry

Posted 2019-11-22T14:03:00Z

Update

The Lord has answered some very specific prayers since January, concerning Peter, bringing more peace to daily life. 

We started working with a second doctor last winter, addressing other health issues Peter has. This doctor has helped us understand more about Peter's mental and emotional handicaps. The Lord has used him to give us more wisdom concerning changes to make in our daily lives, that have been very helpful for Peter. He is much more calm on a day to day basis, and we have greater understanding of how to help him through things that are difficult for him. He has been much happier over all and far less agitated and aggressive. We give thanks to the Lord for this time of reprieve, especially for the other children.

 


Peter's EEG showed he has childhood epilepsy. The MRI did not show anything of much importance. This helps explain some why's, but doesn't help solve anything really. The children's hospital also did more testing and evaluations that they felt like Peter needed. They don't see that there is healing for Peter. Through all this, We have been very thankful for the way the Lord has lead us and which doctors He brought into our life, at the first. The Lord has brought much healing.


His doctor in New York is very happy with the healing and development we are seeing in Peter.  He expects healing to continue. We are very thankful too, as we see continual signs of his brain developing,  instead of regressing as it was, up until August of 2017.

I am also encouraged, seeing some emotional development in Peter, which is slower then cognitive development.

 


Little by little as he becomes more aware of the world around him, there are more things that frustrate and upset him. Learning how to help him work through things is a challenge but we are thankful, because it is all part of healing and development... Just like a baby developing and becoming aware of the world around them. Peter's blissful oblivion at times is not a positive thing, but it is a blessing at times, as often there are things he faces that would be difficult for him to handle. 

This last year he has been able to learn to get himself dressed and help with chores around the house... Little things but for us, they are huge and a gift from our Father's loving hand.

"Come, behold the works of the Lord,...He makes wars cease to the end of the earth;
He breaks the bow and cuts the spear in two;
He burns the chariot in the fire.
Be still, and know that I am God;
I will be exalted among the nations,
I will be exalted in the earth!
The Lord of hosts is with us;
The God of Jacob is our refuge.
Selah". From Psalm 48

 

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