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Updates on Pierson

At 19 weeks pregnant, I found one of my twin boys had shorter lower limb bones in his right leg. Pierson is missing part of his fibula bone, has a shortened tibia bone a[...] read more

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Tuesday July 17, 2018

Well today didn’t go as expected.. Pierson cried unless I was holding him.  I don’t know if he was just tired or what.  He took a couple  naps, but yesterday was a long day and we had to keep him up late to clean his pin sites and the whole routine.  I ended up giving him oxycodone around 3:30 because he just didn’t want to do anything except be held - which was not normal of the last several days.  Unless he decided all his toys here are boring - he usually loves playing by himself at the house.

I did his fixator turns and gave him medicine by myself today - which is somewhat physically exhausting since I have to hold him down.  It was a long day, but Sky came home a little early.  We gave him a bath, and cleaned the pin sites again.  Sky cut some new foam to wrap the fixator and left a little area I could get in and do the turns.  That should help cut down on some of the time it takes to unwrap and get it back together.

I have still not been feeling great since the surgery.  I’m pretty sure it’s just the stress of this whole situation and looking at the pins going through my baby’s skin.  I’m not sure I’m going to get used to that.  Getting another day behind us gets us closer to the end of this. 

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