"You keep him in perfect peace whose mind is stayed on you, because he trusts in you." Isaiah 26:3
This is Jaymie. I have been meaning to write a lengthy post for a few days, but in all honesty, I have been too physically and mentally drained to find the ability to do so. It is late this evening, and Scott is up dealing with pain as I write this. This is our new normal, and I can't say that I like it.
This last Friday, Scott's sister Laurie gave us a night away. It was so wonderful. We went away to Bainbridge Island and pretty much slept and rested the entire time we were away. It was a chance to rest and pray. For me, I also took a very LONG, hot shower and kept the fireplace on the entire time -- my little bits of paradise.
On Tuesday we went to the oncologist and discussed Scott's pain. He was given some pain medications to help him manage pain at this point. The problem with his cancer is the location of his main gastric tumor. It is located at the base of his stomach. It blocks the exit of food so that he feels full and bloated too soon, and the gastric juices also rise up into his esophagus causing heart burn. He can't lie down flat because it causes such bad pain. We have been given two recliners, one for our bedroom, one for our living room. He sleeps in those to help him keep upright.
He has lost another 7 pounds. It is imperative to keep up the weight so he can continue to maintain fighting his cancer with chemotherapy. We were given the option of trying some radiation on the "off" weeks of chemotherapy to try and shrink the mass in his stomach more rapidly than chemo alone to alleviate some of these more problematic symptoms he is experiencing. We are setting up those appointments.
We had our first denial this week, as well. We requested a PET scan for Scott's final Staging test to see if the cancer has spread to any other parts of his body. This test is the best at seeing cancer, but since surgery was not "indicated" the insurance company denied our doctor's request. It is always frustrating knowing that someone behind a remote desk ultimately can deny the doctor's ability to treat my husband with the best quality treatments. We will be getting a chest CATScan instead to complete the staging of his body.
We are meeting with a nutritionist on Friday at 1:00 pm.
However, we are amazed at the outpouring of love from our church family, friends, and loved ones from near and far. We marveled at the amount of prayers reaching heaven on behalf of Scott. To say that it is a comfort is an understatement. We rest even more knowing that God is hearing His saints petition Him on our behalf. And we know that all things work together for good for those who are called according to His purpose.
Right now we are being blessed by two meals a week from church family through a meal train. It has helped alleviate the stress of cooking on days when I am running between appointments and running kids here and there. The kids have had a tougher time as they have begun to see what it looks like to see their dad hooked up to a mobile chemotherapy unit and not feeling well. Cancer is visible to them now. They need prayer for comfort.
Scott needs prayer for pain management, healing, and wisdom with treatment. I need prayer for wisdom in household management and holding it "together" for everyone. God is good to give us strength for every single moment. I know God has called Scott to this, and He will give Scott the strength to endure this. Please pray for Scott's strength and encouragement and perfect peace. He would love the chemotherapy to help him get to the point to be able to preach again. We strive to keep our eyes perfectly focused on the One who is our true source of hope.
Thank you for joining in with us on this journey.