I haven't posted an update in awhile and honestly it's because it's hard to know what to say at this point. The effects of chemo are cumulative and they have definitely caught up with me.
After finishing round 5, I've spent the last two weeks feeling very nauseous, weak and tired. Between the disease and the chemo, I've lost about 15-20 lbs., leaving me with little to no muscle/strength and very small energy reserves. I've been trying to be kind to myself and take it very easy when I can, recognizing that this is my reality while I finish out this insane treatment. All I can do is eat as well as I can, drink plenty of water, and get some movement in each day (some days more than others). When I'm in my nadar, which lasted about 5 days this round, there were several days when I was onto a forced liquid diet and couldn't do much of anything - including talk (I hate you mucusitis!!!). I'm always so so grateful when that part of the cycle passes.
After finally eating again for a few days, sadly I went off track Saturday night when I indulged in too many slices of the yummy (gluten & dairy free) pizza we've been treating ourselves to about once a cycle during this experience (ack!). Bellyache ensued and landed me in the ER yesterday getting fluids because I just couldn't get any food or water in me and felt really woozy.
I'm so close to the end and hopefully this is a not-too-awful bump in the road.
The plan is for me to get re-hydrated and re-fueled with food for the next two days and then start my final chemo round on Wednesday. Honestly I just can't wait to get it done and wish we didn't have to delay at all, but I can't go into six days of chemo depleted like this.
Please raise a glass with me—mine will be water, of course.
Here's to my final round of DA-REPOCH! May I get to it as soon as possible and through it as easily as possible with the best nurses, doctors and hospital support staff ever (thanks UCSF!!!). Then let the healing process begin!