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Sarah's Warriors

Sarah was recently diagnosed with synovial sarcoma. We are using this site to keep our family and friends (Sarah's Warriors) updated with her struggles and successes as [...] read more

Latest journal entry

Long Overdue

Well, I've really neglected my duty these past few months as the communicator for Sarah. For that, I am sorry. I just checked and my last update was in June.  A lot has happened since then, so I will try to summarize without getting too wordy.


Sarah received her radiation at Alton Memorial Hospital. She did great and the radiation team was wonderful. Her radiologist at Siteman was still in charge of the plan, but it was nice to have the shorter drive to Alton each day. Sarah received radiation therapy 5 days per week for 5 weeks.  She did great with minimal side effects other than a nasty burn that became very painful towards the end of her treatment.  They apparently thought she was a good patient because they interviewed her and featured her in their quarterly magazine! Autographed copies are available upon request. ;)


Once she finished radiation, she returned to work full time. It has been hectic as the team she is on is working on a big project that goes live Oct. 30th. Pray that it goes well and things can slow down a bit after that.


She met with her doctors in August and her scans showed no signs of cancer! I can still hardly believe that I get to type that. It's been a crazy journey and as all cancer patients know, the journey never ends. There will continue to be scans for the rest of her life since the cancer could return. We know that we aren't promised tomorrow so we try to make the most of everyday.


When she met with her doctors, she also learned that her lymphatic system in her lower left leg (the cancer leg) was severely damaged from the various forms of treatment and because of that, she needs to wear a compression socks for the rest of her life to prevent lymphedema (basically irreversible swelling).  We decided that was a fair trade off considering the alternative was amputation.


She meets again with her doctors on November 15th. She will get a new set of scans and follow up on some other symptoms she has acquired as a result of chemo and radiation. One of the issues that she is dealing with is carpal tunnel and trigger fingers on both hands.


She has been going to physical therapy to help her regain as much strength in her left leg as she can and her therapist is pretty fantastic!


Her hair is growing back and looks great short so she has decided to keep it that way for a while.  When her hair had just started coming back in, her Uncle Leroy commented one day, “Sarah, your hair looks great! If you told me you paid a fortune for that haircut, I'd believe it.” We thought about it for a second and I said, “Well, I guess she did.” We all had a good laugh. There has been a lot of laughter over the past few months. Things are getting back to normal and that is a welcome change.  We thank you all for your support and prayers! I will continue to post short updates after Sarah's checkups and anytime something noteworthy happens.


May God bless you and keep you.


Love and hugs to you all!

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