Wow, it’s been an entire month. Happy Valentines Day all. Remember to let your loved ones know how much they mean to you.
Lots has been happening to Schmoul since the last update. First he had a scare with very high liver enzymes being reported. Abracadabra, lots of shifts in his medications. Liver enzymes went down. Prednisone was reduced at the beginning of Feb.
Unfortunately, his skin began to peel and itch pretty significantly. So hocus pocus, more med changes. Prednisone back up to 60 mg a day. Unfortunately Schmoul is starting to look like a chipmunk. Liver enzymes are back up again 😟
We see Dr. T tomorrow and will expect more med changes. We were approved for a new promising medication for chronic GvHD which is awaiting FDA approval. We pray this will help him.
Tomorrow we also go to Dermatology Grand Rounds to see if any of the big brains can recommend other treatment for his skin.
Despite all of this, we both remain hopeful that we will get through this and grateful for the love we have for one another.