Share. Connect. Love.

Posted 2019-09-18T06:37:16Z

Day +491 and Schmoul's B-day

Hi everyone,  I guess it's a good sign when I haven't posted in over 2 months.  Schmoul celebrated his 57th birthday today and this is a picture of the sunset we enjoyed at dinner with family.  We all are so grateful that we get to spend this time together.  For as long as I can remember, Schmoul has always said that he wanted to outlive his father.  Today, despite all the odds, he did.  Warren would be very proud of Schmoul's strength and determination.  The other photo is one of the few I have of Schmoul with his dad. [...]

Posted 2019-07-08T19:18:53Z

Day +420 -- Meet Yehuda Cohen!

Hi Everyone,  another month has gone by and we have been in touch with Schmoul's donor, Yehuda Cohen. These are some of the pictures he has sent us and he graciously said we could share with you all.  He seems to be a wonderful young man to whom we will be eternally grateful.  His blood went onto the bone marrow registry when he was a new recruit in the  Givati Brigade.  It is an Israel Defense Forces infantry brigade stationed within the Gaza Strip.  Yehuda is currently studying at a yeshiva in the north of the country in a city called Maalot.  His family is from South Africa but they immigrated to Israel when Yehuda was 4 years old.  Yehuda is a triplet and also has twin siblings. His home is in Beit Shemesh, which is right next to Jerusalem.  He was very happy to know that his stem cells went to a Jewish person, as are we.  [...]

Posted 2019-04-15T19:53:00Z

Day +336 - Happy 28 years together!!

Today marks the anniversary of our journey together.  Neither one of us believed it would last and Schmoul was afraid we were going to ruin our friendship.  In fact, because we had a friendship before we started our path as a couple, was what helped to see us through all our trials and tribulations. We have been each other's best friend through it all.[...]

Posted 2019-03-20T06:37:49Z

Day+309-Schmoul's Great Adventure

Here we are - over 300 days since Schmoul was reborn.  He was able to go on his first big adventure.  24 hours in Borrego Springs to see this year's wildflowers.  Schmoul and I have lots of memories of our times in Borrego over our 28 year history.  Many camping and hiking trips and lots of fun and love.  This year's "super bloom" wasn't quite as spectacular as we had hoped or maybe our expectations were more than they should have been.  Anyway, it was nice to get away from all the appointments and duties that overwhelm us on a daily basis.[...]

Posted 2019-02-13T22:31:20Z

Day +275 - Days of love and gratitude

Wow, it’s been an entire month. Happy Valentines Day all. Remember to let your loved ones know how much they mean to you. 

Lots has been happening to Schmoul since the last update. First he had a scare with very high liver enzymes being reported. Abracadabra, lots of shifts in his medications. Liver enzymes went down. Prednisone was reduced at the beginning of Feb. [...]

Posted 2019-01-14T06:06:25Z

Day + 244 - Updates

Can't believe we are already half through the month.  Schmoul continues to improve slowly.  He had good days and bad days.  Unfortunately, we never quite know what may set something off.  His skin is doing pretty well although it is still is very itchy and flaky.  He continues to go to physical therapy and is getting stronger and more stable on his feet.  Today he went on a 1.3 mile walk by himself and without his walker!!! He does his exercises regularly and continues to work on his omelettes.[...]

Posted 2019-01-01T07:54:49Z

Day +231 Happy 2019 !!!

 Schmoul and I are sitting here watching one of our favorite movie series( Aliens); Schmoul just loves the space marines; and reflecting on 2018. What a year!  All in all, it was a damn good year.  Last year at this time, we didn't even know if Schmoul would be able to have a BMT and all we could do is put it into Howard's hands.  Here we are today and Schmoul's body is filled with Disraeli Gears and for all we know he has beat Mastocystosis. [...]