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Posted 2019-01-18T20:41:00Z

Little Ava is doing well!

Hello Everyone!

I'm very pleased to report that Ava has now had FIVE really great days in a row!

After spending several days healing from some bleeding in her lungs, Ava has made great progress and was able to switch to a much gentler ventilator and needs much less oxygen to breathe normally. This is great news because it means that Ava's lungs will be under much less stress giving her lungs a chance to continue to develop normally. Too much oxygen can also have very serious side effects for developing eyes so this is a major step in the right direction.

Ava also suffered some bleeding in her brain and has an ultrasound every week to monitor the damage. We won't know in too much detail what is going on with her brain until she is able to have an MRI, which won't happen for quite sometime. The good thing about a still developing brain is that there is every possibility that any brain damage she's suffered will heal as her brain continues to grow. Right now, the bleeding is not getting worse. The doctors are so pleased with Ava's progress that they'll be monitoring her brain every 2 weeks instead of every week which is another step in the right direction.

Since birth, Ava has been getting all of her fluids and nutrients intravenously as her digestive system was also still developing. This week, Ava has started with very small amounts (about 1cc) of breastmilk every 6 hours to jumpstart her digestive tract. She is tolerating it well so far, so they'll slowly but surely increase the amount she gets until she's fully on breastmilk.

On Sunday, Emmett met his little sister for the first time, which was very exciting for him. He's very young and so hasn't been able to fully understand everything that is going on but he seemed very pleased to be able to put a face to a name lol. He even got to touch her little foot which he's been talking about all week. 

Yesterday, we got to hold Ava for the very first time. We couldn't hold her close because she still on her ventilator but it was so nice to finally have her in our arms.

We're so very excited that Ava is doing so well but still know that we're at the beginning of a very long road. The support of our friends from all over the world has been incredible, truly amazing. Thank you all so much for sticking with us through it all.

LOVE

DanielSonja holding little Ava for the first time!

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Comments (13)

  • Corinne Lawless
    Corinne Lawless

    Beautiful photo; great great news! Keep it coming xxx

    one year ago · Reply
  • Katie Uhalt
    Katie Uhalt

    I love the update, the picture and Em/I are all about her FOOT! Love you guys!! XOXO

    one year ago · Reply
  • Linda Rickman
    Linda Rickman

    Great news and progress. We are praying non-stop. She looks beautiful and like. First ggter😘💪🏾👏🏾👏🏾

    one year ago · Reply
  • Linda Rickman
    Linda Rickman

    Fighter

    one year ago · Reply
  • Priti Castaneda
    Priti Castaneda

    Soo sooo happy to hear about our little baby girl and her week! Wow! N Emmett met his sister! You guys got to hold her!! I'm all smiles! Love you all.

    one year ago · Reply
  • Linda Jameson
    Linda Jameson

    Thank you for letting us know. Sounds like improvement. What a joy to hear. ❤️ to you all.❤️Linda

    one year ago · Reply
  • Bob Queen
    Bob Queen

    Best of luck with this. Love from the Kathman/Queen family.

    one year ago · Reply
  • Teena Hernandez
    Teena Hernandez

    Oh, such great news and great picture! Thinking of you guys.

    one year ago · Reply
  • Amanda Marasch
    Amanda Marasch

    Come on Ava! So many people love you already! I am so beyond grateful that you got to hold her. More strength and healing light coming your way.

    one year ago · Reply
  • Daniel Norman
    Daniel Norman

    That’s great news. Keep us posted

    one year ago · Reply
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