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Posted 2018-12-02T07:23:00Z

CHEMO Sandwich's

stacys-hope/0bd3b6dd-7763-4fbf-b9e7-861d7160706fIt’s the night before I am discharged from the hospital after my first round of chemotherapy.  It was hard yet better than I expected. It is a bummer to have to be in patient/in the hospital while receiving chemo continuously, but at least they are there when you start to feel bad and can sometimes rescue you from feeling awful.  Pain, fatigue, mouth sores visited me during this time and I now have meds to help me endure the healing process as my bone marrow slowly send out what my body needs to heal the healthy cells. The day before I started chemo, I had a double access port placed under my skin in my R upper chest. In order to start the chemo, they had to access the port via 2 large needles that would stay inside the port (hard to explain but I added a pic to help!). That process made me glad I was wearing a mask as I said a few words other than ouch! Wow, that hurt! 

To simplify the chemotherapy regimen that I am on, I used the analogy of a ‘sandwich’.  One full session of chemotherapy consists of:     **2 day in-patient stay of 3 different chemotherapies PLUS  2.5 wk break (for my bone marrow/me to recover) PLUS  5 days of in-patient stay of 2 continuous chemos PLUS  2.5wks break recovery. **     All of the above between the 2 asterisk is ‘1 Sandwich' or 1 cycle in my mind. I will be having 4 chemo sandwich’s before surgery to shrink the tumor and then 4 chemo sandwich’s after surgery. 

Thus far...I’ve had 1/2 of chemo sandwich.  I’m heading into my recovery time (includes labs and tests to monitor) before I go back for a 5 day in patient stay again on 12/19 - 12/23. 

A very cool thing happened while I was at Stanford Hospital; my roommate, against all odds, was a young female with the SAME disease diagnosis of Ewing's Sarcoma! Since this is a very rare sarcoma <4% in adults, the chances of having a roommate with the same disease diagnosis = very unlikely! She is a couple chemo sandwich’s ahead of me and was able to share valuable info that helped my heart a lot! An added benefit, she has her PhD in Bio Med Engineering.  When both of us were feeling up to it, we had a few very interesting convo’s about medical research! 

UPDATE: (next day 12/1, TODAY) I ended up having to go to sleep due to fuzzy chemo thinking and pain in my arm. Today was a rush of labs (to check my blood panel and electrolytes) before I could get the ‘final ok’ from the main attending that I could go ‘home’!  It is nice to be back in a bed that’s comfy without several computer lights and IV machines on around you all night long. 

A HUGE thank you to all of you who are walking with me virtually or literally as I take my chemo sandwiches until the cancer is all gone!! Thank you to my coworkers/hospice nurses for your support, both by my side or from afar.  All of your support, encouragement, texts and love sent has been so encouraging for my soul, which in a way heals me...actually quite literally. It is also undeniable to me that God has gone ahead and at least made the way a little straighter, comfier and friendlier for me. 

SO Much LOVE and gratitude for you, 

Stacy

PS. One of my nurses was from Iran! Amazing!

 

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Comments (13)

  • Michelle OConnor
    Michelle OConnor

    Keeping you in my thoughts and prayers everyday! Much love to you!! 💜🦋

    one year ago · Reply
  • Denise Miller
    Denise Miller

    Hope you recover from the chemo downside quickly. and that the goodside does its job thoroughly. Prayers for you.

    one year ago · Reply
  • Juliet LaFleur
    Juliet LaFleur

    Checking "first half sandwich" off the list. One part done & over. Hoping recovery time goes well & sending loving & healing light over you at all times.

    one year ago · Reply
  • Ruby Snyder
    Ruby Snyder

    You are such a beautiful and amazing human! Lifting you up.

    one year ago · Reply
  • Linda Stenzel
    Linda Stenzel

    Love that the Lord gave you a roommate with the same cancer and who is well-learned in medicine as well! In the dark, He gives precious stars of light. Prayers continue, sweet Stacy.

    one year ago · Reply
  • Shelly blanshei
    Shelly blanshei

    Sending you love and prayers everyday. You are on my mind every day.

    one year ago · Reply
  • Jill Anela
    Jill Anela

    I just love knowing there are no coincidences in this life & seeing God wrap His arms around you & love you whether it be your nurse from Iran or your roommate with the same dx. That’s incredible! Praying for healing so you can move on to your next half a sandwich! One half a sandwich at a time! 🙏🏼 Sending you SO MUCH LOVE!!! ♥️💗❤️

    one year ago · Reply
  • Kelly watkins
    Kelly watkins

    Praying for you every step of the way !! 🙏🏻Oh that the Lords tender mercies would be with you every morning and may you feel his presence in abundance !! ♥️

    one year ago · Reply
  • Robin Swartz
    Robin Swartz

    I love that God is putting people in your treatment path that are sharing with you LITERALLY. I was thinking about the sweet times I remember singing with you at Bakersfield College and the sweet spirit you showed me while I was in my own pit of family and relationship struggles. You ARE a blessing and a light to so many, including me. I know Jesus is holding your hand through this process and is going to reveal some of that amazing strength and love that you carry. If you have an opportunity, listen to this song about life's journey... it has meant so much to me over the past year and think it will touch you too! "Every Mile Mattered" by Nicole Nordeman. Love you Stacy!

    one year ago · Reply
  • Lori MacPhail
    Lori MacPhail

    Stacy, you are giving all of us a gift by sharing your experience. You are a wonderful writer, eloquent and precise. As one of your MNLs, I will be here for you in prayer and anything else you might need.

    one year ago · Reply
  • Mary Lou Smyth
    Mary Lou Smyth

    Hugs, Stacey! You've got people in New Jersey praying for you!

    one year ago · Reply
  • Kathleen Alvarez
    Kathleen Alvarez

    Sending you lots of love and hugs, dear friend. Im so glad you have been able to connect with these new people in your life just when it probably felt like you were all alone. You make friends wherever you go and, as you are showing us now, whatever the circumstances. God is bringing these people into your life, and you into theirs, at just the right moment. Take care sweet friend!

    one year ago · Reply
  • Robin Swartz
    Robin Swartz

    Praying strength, comfort and love for you today. If you had a "magical globe" you could see how many people from all over the world love you and support you! I hope your "sandwiches" are treating you as nicely as they can under the circumstances ( :

    one year ago · Reply