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Final Post

One last post to close out this blog:

I saw one of John's phones light up this morning, I picked it up to find a group text between his phone and two "new" friends who apparently met at John's Funeral Mass yesterday.  Text, "True pleasure to meet you, one more of JohnD's introductions as he took his journey to God.  Will follow up."  Reply, "Honored. Look forward to learning more about those 30 years you knew him.  All the best..."[...]

Peace at last...

Dearest friends and family, John passed peacefully this morning at home.  Please see the below link for arrangements.  Words are inadequate to convey how much you all meant to John and our family.  Thank you for being here for and with us! xo[...]

Hospice

Dear friends, John has been on Home Hospice since Sunday.  Hasn't gotten out of bed since Friday.  

Prayers accepted for a peaceful passing.  We will post arrangements here when the time comes.  As with everything John did, he is fighting still![...]

Where we are today...

Dear friends of JohnD, I have to admit that these posts are getting harder to write. Today we went to Monmouth Medical for a lumbar puncture to try to collect cells so Dr. Cohen could see if there was a different type of cancer present and treat it accordingly.  The procedure was aborted because the interventional radiologist felt it was too risky due to the location of brain tumors in relation to the spine.  We then went on to the radiation department to begin the 10 round series of daily treatments to try and decrease the pain and effects from the brain tumors which are increasing due to cancer in meningeal fluid.  Not a pleasant experience after radiation, to say the least.  Holding out hope that it will have a more positive effect as time goes by.[...]

New Developments

Chemo 42 done.  What's happening now?  A LOT!  John has 2 blood clots in his leg and cannot be put back on blood thinners therefore an IVC (Inferior Vena Cava) Filter will be placed tomorrow at Monmouth Medical Center, Lakewood Campus.  The filter will prevent the clots from traveling to his lungs or heart.  Those of you following along for the past 5 1/2 years may remember that he fought with one of those filters in the past.  We finally found an interventional radiologist at The University of Pennsylvania to remove it after a failed attempt at Monmouth Medical.  We are left with no other option but to try a filter again and hope for a different outcome.  [...]

Brain Surgery

Thank you all for the many prayers that continue to keep John uplifted!  The Gamma Knife surgery couldn't have gone better!  Tumor was 2cm, totally spherical and NO OTHER TUMORS were located!  We were at the hospital at 6:15 am and left at 11:30!! WOW! The team of doctors, physicists and nurses/staff were phenomenal!  Even Dr. Cohen stopped in to see John when it was over.  REST is on order now.  10 days of steroids and a repeat MRI in a month.  Chemo #41 this Wednesday.  He keeps up the fight.  When we asked for a little break after the Gamma Knife Dr. Cohen said, "sorry, you have to keep fighting, soldier!"[...]

MRI results

Dr. Cohen read the MRI scans from Saturday night and called John into his office today.  The lesion has grown a little and Seth wants to address it pronto.  Apparently if you out-live your prognosis the cancer finds new places to inhabit!  His office set up appointments for CT Scan tomorrow, Neurologist tomorrow and Radiologist on Thursday to discuss Gamma Knife treatment.  Prayers accepted for the new hurdle!  Chemo schedule remains the same and his numbers are still looking good.[...]

John and His GRAND-GIRLS!

Greetings!  Great news:  Gianna Kathleen was born on Feb. 5th! Gabriella and Tim are truly blessed, as are we all!

Well, John completed chemo #40 today; some kind of a record for sure!  Unfortunately John had another seizure last night.  He is scheduled for an MRI tomorrow so the doctors can try to get a handle on what is going on!  Continuous prayer suits us![...]

HOME

Thank you all for prayers and love, ONCE AGAIN!  JohnD is home.  

At this point we have to just wait until the next MRI is done in 6 weeks to know exactly what the diagnosis is and how to proceed.  For now he is off of blood thinners so we need to be ever so vigilant about blood clot awareness.  [...]