Share. Connect. Love.

New Developments

Chemo 42 done.  What's happening now?  A LOT!  John has 2 blood clots in his leg and cannot be put back on blood thinners therefore an IVC (Inferior Vena Cava) Filter will be placed tomorrow at Monmouth Medical Center, Lakewood Campus.  The filter will prevent the clots from traveling to his lungs or heart.  Those of you following along for the past 5 1/2 years may remember that he fought with one of those filters in the past.  We finally found an interventional radiologist at The University of Pennsylvania to remove it after a failed attempt at Monmouth Medical.  We are left with no other option but to try a filter again and hope for a different outcome.  

John's latest MRI, on April 4, showed 2 more brain tumors and cancer in the leptomeningeal fluid (cerebral spinal fluid).  After meeting with Dr. Cohen and Dr. Weiss, neuro-radiologist, it is determined that whole brain radiology is necessary and will be scheduled quickly.  This will not cure the situation but give quality of life.  Dr. Cohen also wants to schedule a spinal tap to examine the cancer cells.  Chemo schedules and protocols will be addressed as time progresses.

As Dr. Weiss said, John has lived well beyond his prognosis and there is NO DATA on outcome of any of this. 

John will reprise his role as "Andrew the Apostle" in the Living Last Supper at Nativity during Holy Week on April 10, 11, and 12 at 7:30pm.  

We will continue fighting and we most certainly will continue to pray. XO

"May Your Word light up our way"

Stay in the know. Sign up to receive email notifications the moment new Journal entries are posted

Comments (10)

  • Maria Maita
    Maria Maita

    I have no words that convey the blessing that John and your family are to so many people. Your example of love, faith and hope continues to keep us in check everyday.

    one year ago · Reply
  • Betsy scheffling
    Betsy scheffling

    We are so sorry John and you all are going through all this. As always we are praying for you all and for successful surgery for the filter placement. Sending lots of love your way. If there is anything you need please call. 😘❤

    one year ago · Reply
  • amy
    amy

    as with christ's suffering we were saved... through john's we are given faith...you are in our prayers. amy

    one year ago · Reply
  • jeremy minnetian
    jeremy minnetian

    Love and peace to John, to you and the family. You are in our prayers always. xo Jeremy

    one year ago · Reply
  • Cecila Parisi
    Cecila Parisi

    God Bless, John.

    one year ago · Reply
  • Patrick  Sullivan
    Patrick Sullivan

    Hello Annie and John D and Family, We will accelerate our Daily Prayers for John and I am blessed to perform with "Andrew The Bringer" next week at the Living Last Supper... I hope everyone can make it to one of the performances. This will be John's third (3rd) year performing, since being diagnosed with cancer- Truly a Miracle... May God Bless, May God have Mercy and we pray for John as he continues his braveness, courage and FAITH during this battle... The Sullivan Family

    one year ago · Reply
  • Andrea Dinger
    Andrea Dinger

    John, May our Lord's light and strength continue to sustain you in healing. You and your beautiful family are an inspiration in so many ways. Blessings and Prayers, The Dinger Family

    one year ago · Reply
  • sam adjangba
    sam adjangba

    John, We are praying for you and your beautiful family.

    one year ago · Reply
  • Nancy Peters
    Nancy Peters

    God bless John and your whole family. Your love and courage inspire me daily.

    one year ago · Reply
  • Eileen Nociolo
    Eileen Nociolo

    John, You and your whole family inspire us every day. The Lord is good to us in giving friends who show us how to live. The Nociolo's

    one year ago · Reply

Leave a comment