So, Deacon Shawn blew us away this Sunday when he said that people try to find the "Secret Sauce" in life and that we already know that it's PEACE! When we decided to stay with John's hematologist in West Long Branch instead of going to NY, Boston, Texas, California, Europe, Dr. Cohen said to us, "there's no 'secret sauce' we have the protocols here". He also said that he was going to give John THE most aggressive protocol and see how he tolorates it and adjust from there. This last adjustment in treatment seems to be the ticket. NOT saying chemo is delightful but, at least we feel that he has a fighting chance! John truly appreciates the love and prayers that are holding us together. We are standing-together through this fight. [...]
John D - Journal
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In true John D fashion...
I walked into chemo to visit with him and he was on a conference call. It was comforting to just watch him be himself...I could sit and listen to him talk about things I will never understand for hours. Even Lucia says "Papa" when she sees a phone. [...]
After enjoying this past weekend of feeling good John is now taking on round three of chemo. He actually got to go to church yesterday and the best part was being able to carry Lucia up with him for Communion! Dr. Seth is pleased with blood counts today but asked him to increase his eating; we'll work on that![...]
Went to see Dr. Seth yesterday and told him that there are no good days between chemo treatments, just bad or worse days. Seth said he will adjust the protocol further. He also prescribed more medications for pain. John finally took the pain medication yesterday and was able to get some needed sleep. Let's hope with further adjustments the chemo can do it's job without more discomfort. Dr. Seth is confident that we will see good days and that the chemo WILL be successful. As always, your continued prayers are much appreciated! He reminds us at each visit that John is in God's hands...[...]
So, the first few days of this round were a bit easier because of the steroids they pumped in before the chemo drugs...turns out that once the steroids wear off it's actually more difficult. The effects of chemo are cumulative and become more pronounced as time goes on we are learning. We appreciate all the posts, prayers, cards and love directed our way! JOHN IS FIGHTING for sure and will continue to fight for life. Many have asked about meals/food and we appreciate the concern and desire to lighten the load but we are all set for now by way of food. Since even his favorite foods do not taste the same to him we are experimenting with recipes here. You can imagine that some smells are not even tolerable. (Moms and chemo warriors know this first hand!) Thank you all for your support, it really means so much to know that so many good people are praying for John's recovery. "You have to fight through some bad days to earn the best days of your life." - Author Unknown.[...]
Dad met with Dr. Seth this morning to have blood work checked. Everything looked good so he stayed at the office for Round Two of chemo. They adjusted the dosage to address the side effects and reactions he had after round one...this includes giving him a shot to help build his blood cell count. Hopefully he can avoid the hospital this time! He is home with a pump which administers the fifth chemotherapy drug until Wednesday.[...]
Still waiting for discharge but he will be home today! Lab work looked good enough this morning. More updates to follow later tonight.
"All I really need is a song in my heart, food in my belly, and love in my family..." -Raffi (his song keeps coming back around in my head)[...]