Dr. Cohen is very encouraged, enthusiastic even, about John's progress. John had another palpitation episode at the very end of the session. Nurses said this happens to some patients while enduring the Folfirinox regimen. Happy to have session 5 behind us. What a relief it was to finally get home tonight! [...]
John D - Journal
Read Entries & Updates
Johnny made a surprise appearance today so all six of us (plus the munchkin) were able to spend time together. It was even above 30 degrees today so we are grateful for the sunshine and the warmth on our faces which was a much needed break from the freezing cold. When I closed my eyes I almost convinced myself that it was Springtime.[...]
After a very relaxing and enjoyable weekend together we geared up for another round. The chemo days are LONG. First bloodwork, then a consult with Dr. Seth, and then the hours of chemo later... and he wasn't home till dinner time. The good news is that his numbers are looking "fantastic" as per Seth. This time he had a drug reaction which he hadn't experienced before which required some intervention - he had a shortness of breath and tightening of his tongue/ chest so they gave him some oxygen and atropine then restarted the chemo drip once everything was calmed down. He's home with the tingling of extremities and "normal" side effects. Ready for a sleepless night and a long week ahead. Wishing Tuesday away so that the pump can come off on Wednesday and he can look forward to another string of good days. "When peace like a river, attendeth my way, When sorrows like sea billows roll; Whatever my lot, Thou hast taught me to know, It is well, it is well, with my soul." -Spafford
We are encouraged by the blood work results showing that the tumor markers are declineing but the fact is that our patient is still truly suffering. Each day is a struggle, as any chemo survivor will confirm. John is on one of THE most aggressive chemo protocols available causing pain, being so cold he can't even warm up under an electric blanket, weight lose, mouth sores, (we keep telling him to eat for the calories but how do you eat when your mouth hurts?) abdominal discomfort, muscle spasms...and that's just the physical side of things. [...]
Good news: Blood work from today showed that the tumor markers have decreased by more than 50%! This is THE news John needed to hear to continue the fight! Regimen remains the same: Chemo every other Monday for another 3 rounds then a CT Scan. Even though it takes 10 days to get 4 somewhat comfortable days it's obviously what is needed to get the job done. [...]
Welcome to the John D support family! This site is for family and friends, old and new, to organize our efforts to support this extraordinary person. This page will serve as your home base for rallying the troops, receiving updates to support John D. Here's the plan:
Your First Step: Please take 30 seconds to click on the "Follow" button on the top right of this page. This will allow you to receive updates, read journal entries, make donations, share John D’s story on social media, and help the family with week-to-week calendaring needs. Though not mandatory to follow John D’s page, we encourage you to easily create an account with your name and email in order to be able to post photos, leave comments and sign up as a helping hand on the Calendar page. Feel free to upload a photo of yourself to your profile so we can get to know and recognize others on John D’s support team. After clicking “Follow” above, read on to learn more about what you can do to help.
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