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Posted 2015-09-26T13:02:19Z

good morning, friends

I had meant to post an update a couple of days ago, but time and a bit of fatigue postponed it  Thanks to all of you who are following this site and posting comments.  Though I haven't yet figured out how to acknowledge your comments, the site notifies me when there is one and I read it and am most appreciative of all your support and good wishes.  I made it through the first of 6 cycles of chemotherapy with little more than fatigue, hair loss and a nasty reaction that looked like very bad acne, then abated on its own after a week.  I showed up Wednesday to have the 2nd bout of chemo and found that my port had flipped, meaning that it couldn't be accessed.  Apparently this is very unusual.  Two surgeons tried to manipulate it back into place, but when that failed, I had an unscheduled surgery at my surgeon's office on the same campus to return it to its proper orientation. I then went back over to the hospital to get the chemo the same day, which resulted in 3 nurses having to stay until 7:30 p.m. until I was done. And not a single day in treatment delay.  This is a time when I am most grateful to have the coordinated care in close proximity...I'm quite sure if I were having treatments in Portland or Boston, I would not have had such a result.  I am very pleased with all the care I've received, the fact that the providers share information and they smooth out all the wrinkles and all I have to do is move from place to place as advised.  So that's it for now, and I expect a couple more days of slow moving and I'll get some energy back.  Thank you, thank you, to each of you, xo, Sue

 

 

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Comments (15)

  • Barbara Greene
    Barbara Greene

    Sue - you are so lucky to be close to your doctors and hospital - makes such a big difference when there is a bump in the road. I'm so glad you got your full treatment on your scheduled day despite all the delays. Not to sound like your mother - but - get as much rest as you can to build up your immunity. You'll be dancing in the streets in a few days!!!! Keeping you in my prayers always! Love, Barb

    4 years ago · Reply
  • Marilynn Dodge
    Marilynn Dodge

    Keep hangin' in there - you have sooooo many people rooting for you, praying for you, sending you warm thoughts and good wishes. I'm one of 'em! Much love, many prayers, M ;-)

    4 years ago · Reply
  • Patricia McDonald
    Patricia McDonald

    Sue, I have heard very good things about the Oncology care at Pen Bay! I am so glad you are being taken good care of... Thinking of you always! xo

    4 years ago · Reply
  • Andy Hartzell
    Andy Hartzell

    Sue - I am glad to hear you have made it through the first two chemo sessions. Sending you lots of good thoughts and prayers from way out here. Love, Andy

    4 years ago · Reply
  • Carole Brand
    Carole Brand

    Hi Sue....well, this is the second time I tried to leave a message....not my fault!! I have a little friend who is trying to help me write this and the first time he managed to disconnect the internet. Now he is trying to help me write so any typos are his.....xxxjjjggssfffft....I am sure that means "come and play with me" in kitty speak. Actually we both desperately hope you are feeling up to a visit.....I am running out of ideas for play and also energy for chasing toys all over the house. So glad to know that you are getting good care at PenBay....which is exactly what should be happening....you get to focus on your healing and they make it seamless and supportive. Uh oh...here he comes again...better sign off.

    4 years ago · Reply
  • Jane Grohs
    Jane Grohs

    Sue, I'm sorry about the Port disappearing. Mercy!! You are back on track now. We had a great card party, but missed you. Sadly you will not be eating lobster or drinking peg's wine. People playing bridge seemed to be more relaxed this year. It will be good to have you back again. Jane

    4 years ago · Reply
  • Connie Beasley
    Connie Beasley

    Dear Sue, I'm so glad to hear that things were corrected with dispatch so that you could have your second treatment. That was good, and I agree that being here close to home with such a good team taking coordinated care of you makes this phase of treatment so much better. Of course you know that all who care so much about you are always sending good wishes and love. I hope that the tiredness that is a part of chemo will abate soon and you will up and running again. Please let me know if there is a way I can be helpful to you or Bob. Love Connie

    4 years ago · Reply
  • Jill Goodwin
    Jill Goodwin

    Thanks for the update Sue. Wow, what an adventure with the port - it's nice to keep your medical providers on their toes with something unusual to deal with! Glad to know you've got two treatments down - you're doing great. You'll be finished with them before you know it.

    4 years ago · Reply
  • CAROL DUNLOP
    CAROL DUNLOP

    Hi Sue, so pleased to hear that the problem with your port didn't hold up the treatment. I'm not familiar with the way things work over there, but it sounds very smooth, as it should be. Thank God for good, dedicated doctors and nurses! Listen to your body; when you feel tired, it's time to rest and recuperate! Try to keep your strength up, physically and mentally. I wish I was there with you, missing you and Bob lots. love Carolxxx ps. Soup is on its way! x

    4 years ago · Reply
  • Sandra Overlock
    Sandra Overlock

    Hi Sue, Thinking of you and so glad you are keeping us in touch. Wishing you no more interruptions in your treatment. Rest, rest, rest.

    4 years ago · Reply
  • Sue White
    Sue White

    Sue, You are still sounding so positive. We're grateful that you have such good care! I'm looking forward to our lunch together! Sue

    4 years ago · Reply
  • Michael Dixon
    Michael Dixon

    A great medical campus, for sure, but you also sound like the ideal patient. Finding the positives in your treatment has to help you through. Best wishes for mild reaction this time round, and a beautiful fall to look at.

    4 years ago · Reply
  • Ben Fahy
    Ben Fahy

    Hi Sue! Just wanted to say hello and wish you well. If you need a hand with anything at the shop, etc, don't hesitate to ask! Be well, breathe, and keep on truckin'!

    4 years ago · Reply
  • Diane Perry
    Diane Perry

    Hi Sue Glad to hear that things are going as well as can be expected. I'm keeping Elizabeth in the loop Diane

    4 years ago · Reply
  • Michael Dixon
    Michael Dixon

    Hope you've had a good day and a good weekend!

    4 years ago · Reply