As I am able to sit at my computer for a bit I want to offer an update. The cancer is progressing in a way that I am becoming weaker and weaker and less able to care for myself. My pain is being managed well enough as long as I stay in bed and limit my activities. Thankfully I am able to do minimum food preparation for myself and take care of my personal needs. In the last few days my legs are becoming weak and I am only able to hold myself up at the most for 15 or 20 minutes with the aid a walker. I see a wheel chair in my future soon. My spirits continue to be very good and I am still quite happy, my mind is sharp, even on the drugs, and I am enjoying engaging with people.
As I lose my independence I am now wanting to organize my friends who have made offers of help for simple things like bringing prepared food, help with shopping showering, and light house work. I think posting on this site it will link to the FB friends who have offered to help. They can the check the calendar page to see what I need and make an offer. They can also call, text, or message me. I will then select someone and take the request down. Any suggestions are welcome as I am trying to work this out. I am also thinking that maybe an alternative approach would be to send a group email out as a need arises and await responses. I see some test runs to see if this works.
Also down the road, maybe soon, I will need more involved in-home personal care with a trained care giver. I would like to consider independent care givers who are well qualified and emotionally and spiritually attuned. If you are able to pass on a personal recommendation I would much appreciate it.
I think the way this can work is that when I post a need on Face Book and you click on the link to my Post Hope site it will take you to my page. On that page you can go to the calendar and see where I have posted a need for a date. If you are able to offer me something text me, email, or call me and I will let you know if it works. Any suggestions are welcome as I am trying to work this out. I am also thinking that maybe an alternative approach would be to send a group email out as a need arises and await responses.