Share. Connect. Love.

Posted 2018-03-16T18:00:08Z

Day 16

Here we are Day 16 post transplant!  It’s been quite the rollercoaster, but we are on the upward trend at this point and I couldn’t be happier.  

We had several meetings with the transplant Dr prior to all this happening and we tried our best to anticipate what was going to happen. 

I’ll save you from the details, but it wasn’t pretty.  Luckily, nothing has been out of the ordinary and that was what I was praying for.  

Day 14 is when we got the incredible news!! 3 days of continuous counts going up.....Frankie is officially Frally!!  Ally’s marrow was doing its job and Frankie was accepting it.  The engraftment has begun. Thank goodness!! 

The ironic part is 10 years ago almost to the day is when frallychic(my email ) was created. I was driving home from my last day of working in NY at my job that I loved, but decided with 2 small kids at home, I was done with commuting into NY and spending 20 hours a week in my car( never cared for public transportation) I called one of my co workers Dina on my ride home and said shoot I only have a business email, I need a personal email so after we tried every variation of karenchic or karenc or what have you, we came up with [email protected]

Dina set me up so when I got home to my 2 small children (before Matt’s time) I had my new email that would mean so much to us all these years later. Funny thing is I happened to have dinner plans with Dina that very night after not seeing her for 5 years!

The first 100 days post transplant are the most critical and we are at day 16......84 more to go!!  The nurses and Dr are all very impressed with how well he is doing.  He hasn’t had anything to eat or drink in over 3 weeks so that is what we need to work on over the next couple weeks to be able to send us home.  He has not complained once about how he feels or what he is going through.....don’t get me wrong, he’s not easy to be around by any means, but if we follow his rules then we are all good馃槉   He’s one strong young man!!! So proud of his positive attitude!!  25 days of isolation and counting!! 

Some other awesome stuff- thanks to everyone in and out of town- we have raised over $7000 for Pediatric Cancer Research!!! Amazing!! 

Thank you to everyone who has been dropping off meals. Frank and the kids have had enough food to a small nation -you guys are the best!

Also thank you to many of the the 9th graders who pitched in and got Frankie some crazy overpriced sneakers that he’s going to be frightened to wear as he thinks he could get mugged....馃槉.   What an amazing group of boys and girls we all have .  The kids were the ones to decide to do this and this is what they really wanted to do to help put a smile on his face...it worked!  

Can’t forget Rich Fardo who installed new flooring in Allys room(all old carpet needs to come up or seriously cleaned prior to Frankie coming home) and thank you to all the boys who were the muscle in moving Allys furniture in and out of her room.  THANK YOU!! Also, THANK YOU TO MICHELE FARDO who volunteered Rich’s services. 馃槣

Lastly, Ally is doing fantastic and is back to life as normal.  With the snowstorm, she ended up missing a month of school.  Somehow I think she was ok with that. 

I’ll continue to update everyone as we continue and hopefully our next entry will be that we are headed home just in time for the nice weather!

Love to all!

#WEGOTHIS

#FRANKIESTRONG

#FRALLYROCKS!!

Stay in the know. Sign up to receive email notifications the moment new Journal entries are posted

Comments (25)

  • Lisa Tubbs
    Lisa Tubbs

    Such great news! Go Frally!

    2 years agoReply
  • Gayle Greenley
    Gayle Greenley

    YAY! Wish I was closer...I would volunteer to do some private duty nursing!! Have thought about that through this entire ordeal. I guess once a nurse always a nurse! Can't shake catering mentality either...LOL Love to all. XXOO

    2 years agoReply
  • Karen Gross
    Karen Gross

    So happy to hear this! Such a wonderful support group and amazing kids you have! Go Frally!!

    2 years agoReply
  • Lauren Wolfson
    Lauren Wolfson

    That is such great news! Lots and lots of love to you all!!!!

    2 years agoReply
  • Jennifer Boch
    Jennifer Boch

    this makes my heart happy! xoxo

    2 years agoReply
  • Elisabeth Grant
    Elisabeth Grant

    Fantastic news!!! I'm so happy that Frankie's counts are going up, and that Ally is feeling well. I know this has to be incredibly difficult for Frankie - I hope the time goes quickly and that he continues to improve every day. You and your family are in my thoughts every day. xoxo

    2 years agoReply
  • Amy Miller
    Amy Miller

    So happy to hear all of this and sending continued positive thoughts for Frankie and his increasing counts! Love, All the Millers

    2 years agoReply
  • Jamie szklany
    Jamie szklany

    So happy for you guys. I think about you and Frankie everyday. I will keep praying for a speedy recovery

    2 years agoReply
  • Karen Bush
    Karen Bush

    I know this is a tough time for you all.... so glad to hear his counts are going up and hope he can come home soon!

    2 years agoReply
  • Missy Navarro
    Missy Navarro

    I am so happy to read this wonderful news. I am praying for you all everyday 鉂わ笍鉂わ笍鉂わ笍

    2 years agoReply
  • Michelle Kimball
    Michelle Kimball

    Great news!! God Bless you all.. xo鉂わ笍🙏🏻

    2 years agoReply
  • Tammy Minsky
    Tammy Minsky

    Great news! I can鈥檛 qait until Frankie comes home so I can stop by to say hi! And maybe soon Ally and I can go get a manicure!!!!!! Sending hugs! #Frankiestrong Love, Mrs. Minsky

    2 years agoReply
  • Sheryl Feinstein
    Sheryl Feinstein

    So happy to read this!! Sending love and prayers for continued good news!! xo

    2 years agoReply
  • Stacey Vinder
    Stacey Vinder

    Wonderful news :). Team Frally! Xo

    2 years agoReply
  • Roberta Ginsberg
    Roberta Ginsberg

    Great news!! Sending continued love and hugs from the Ginsbergs!! Love you Frallychic!! #frankiestrong! 🧡🧡🧡

    2 years agoReply
  • Lita Hofberg
    Lita Hofberg

    I'm only a VUCA-PS -- Very Unofficial Courtesy AUNT--Phil's Side------but I couldn't be more thrilled w this news. Go Team!

    2 years agoReply
  • Danny Mullan
    Danny Mullan

    Big Hugs to you Frank and your family. So glad his healing is moving forward and I'll keep sending prayers. You got this!

    2 years agoReply
  • JoAnn Caragliano
    JoAnn Caragliano

    So happy for Frankie you and your family.....I met Kathy years ago through a very dear friend Geri...My prays and healing thoughts are with all of you and Especially your Frankie God Bless🙏🏼

    2 years agoReply
  • alysa wax
    alysa wax

    So glad & thank g-d Frankie's numbers and progress are positive! To say this is a tough time for all of you is an understatement, but you've got this! #FrankieStrong #FRALLYROCKS xoxo

    2 years agoReply
  • Kelly Forst
    Kelly Forst

    Prayers for you and your family!

    2 years agoReply
  • Joanne Santangelo
    Joanne Santangelo

    Amazing news!!! You have all been through so much, you truly are Frankie strong!! So happy to hear he got his sneakers, the kids were so excited to be a part of making him smile. We continue to send our prayers, love, hugs and best wishes always! 😘💕鉂わ笍

    2 years agoReply
  • Ann Serrecchia
    Ann Serrecchia

    Wonderful News! Can't wait to here your both coming Home!鉂わ笍🙏

    2 years agoReply
  • Jacky Vogt
    Jacky Vogt

    Stay strong Chicariellos - you got this!

    2 years agoReply
  • ali trovato
    ali trovato

    What a GREAT UPDATE!!!!! Im so happy to hear that Frankies numbers are going up and up!! So proud of all of you. The Trovatos are sending a GIGANTIC HUG to the whole Chioccariello family. xoxo

    2 years agoReply
  • Nancy zdanek
    Nancy zdanek

    #frallystrong. 💪🏻💪🏻💪🏻💪🏻 Love the beautiful news! Keep it up Frankie! All your hard, strong work is paying off! You so got this!!!!!

    2 years agoReply