Share. Connect. Love.

Electric Wheelchair has arrived

Tara has received her custom, electric wheelchair.  We are grateful for all the generosity of our family and friends.  Without them, this purchase would have never been possible.  Now we just need sunshine and good weather so that Tara can get outside and take in some fresh air.  Love is being sent to all from Tara and her family.  [...]

What a month its been!

So much has happened since our last journal entry.  Tara's new home has been completely re-vamped to accommodate all of the equipment necessary to go about our daily routine.  We have been more limited to the house over the past month, as getting out and about is a huge undertaking and drains Tara's energy quite a bit.  However, we did get AFO (ankle-foot-orthosis) and custom tennis shoes so that when Tara does walk, her feet and ankles are positioned properly making walking possible and safer.  We have had to install an overhead lift into the bedroom which assists Tara in getting in and out of the bed and this has been bittersweet (the device is helpful and makes the bed transfers much easier for us, but its big, bulky and not very aesthetic in Tara's beautiful bedroom).  We are grateful that it has been installed but saddened that it is necessary.  [...]

Looking forward to the Fundraiser

I have great news.  Tara is planning to come to the fundraiser on Saturday!  Please pray that she gets some rest over the next 48 hours and that everything goes as planned. I know she and her family could use an outing with loving family and friends and a break away from the day to day challenges that come with ALS.  [...]

Tara's Story

From Tara:
I have been going to the doctor since April 2016 with some health issues. After many appointments and lots of poking and prodding we finally received the horrible diagnosis of ALS! My current condition is that I have severe deficit on the left side. My left foot, leg, hand, and arm are extremely weak. My right hand is also getting weak but not as bad as my left; thank goodness. I am right handed and with this hand getting weak, it has started to affect my writing. I am very unsteady on my feet and sometimes I get dizzy.   I also get severe leg spasms and unfortunately that interrupts my sleep. Part of ALS is atrophy of my muscles and extreme fatigue (and yes I am fatigued all day). I am currently using a walker to get around the house and when out and about I use a wheelchair. Even though my diagnosis was in late November,  it has been quite a whirlwind of information and decision-making for me and my family. One thing I can say is that I would not be doing as well as I am if it was not for my amazing family. The love and support from my family and friends has been overwhelming. My parents and my sister have been with me every step of the way through thick and thin.  They have attended every doctors appointment and helped in every decision that we have made thus far. My Uncles, Aunts, cousins and friends have also been beyond supportive I could not ask for a more loving support system than I have. My family has been gracious enough to help me to make my house as handicap accessible as we can for now. This is a work in progress and we are learning every day. Due to my ALS diagnosis I am unable to work and pretty much need help with all daily activities including dressing, feeding, cooking, cleaning, and laundry. Due to my daily struggle my mother has pretty much moved in with me at this point and unfortunately has to deal with my ass on a daily basis !![...]