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Looking forward to the Fundraiser

I have great news.  Tara is planning to come to the fundraiser on Saturday!  Please pray that she gets some rest over the next 48 hours and that everything goes as planned. I know she and her family could use an outing with loving family and friends and a break away from the day to day challenges that come with ALS.  

It's been a whirlwind the past few weeks.  Cheryl put it best when she said "everything we need, we need yesterday".  As an OT with almost 30 years of experience, I am overwhelmed with how difficult it is to navigate the health care system with a disease that is taking over faster than we had expected.  Most things take weeks to order, aren't covered by insurance and often arrive too late, or don't meet the need when they do arrive.   I am saddened that this is happening to my sweet niece, Tara and at the same time am so proud of Tara, Cheryl, Andy and Lisa as they have united as a family to do whatever is necessary to make it through each day.    

The most recent goals for Tara are to modify her home and get the equipment necessary for her to get in and out of bed and into the shower safely.  Last week, they tore out a wall in Tara's new home to allow easier access to the bathroom.  There is a lot more work to be done and the support the family has received through the meal train and such has been amazing.  Andy initially frowned upon the meal train saying "i can cook for them" but very quickly he realized that his day are beyond full and beyond busy and meal prep is the last thing he would have time for.

The fundraiser is coming at the perfect time.  The equipment and modifications that are needed are starting to add up and we're finding that less and less is covered by insurance.  

Thank you for following Tara on her page and for the love and support that you have shown to our family.  Looking forward to seeing everyone this weekend.  

Love, Lodia 

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Comments (3)

  • Gina Peterson
    Gina Peterson

    Thanks Lodia for the updates. Hi Tara. SYD and I are looking forward to Saturday. I'm sure it will be quite a fundraiser party. Hey you know that we would all be there for anyone of us that is faced with a challenge in our lives. We are all truly blessed. I look forward to seeing you and everyone. Love you Tara.

    2 years ago · Reply
  • Lauren Slanec
    Lauren Slanec

    Lodia, you are such a blessing in their lives. It is at times like these that we all will come together to show how much love there is amongst friends and loved ones. The love that will be there on Saturday will be something to behold. I have seen it at your wedding, at your Mom and Dad's at Christmas, and at Mr. and Mrs. Bell's so many times. Your families are amazing. Tarabella, I can't wait to see your beautiful face. It will light up the Engine House💋😘💞

    2 years ago · Reply
  • Marwyn Staples
    Marwyn Staples

    Hi Andy and Cheryl I hope the fundraiser for Tara is a huge success on Saturday. We will all be thinking of you. Love from family in NZ 😘🍀

    2 years ago · Reply

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