So much has happened since our last journal entry. Tara's new home has been completely re-vamped to accommodate all of the equipment necessary to go about our daily routine. We have been more limited to the house over the past month, as getting out and about is a huge undertaking and drains Tara's energy quite a bit. However, we did get AFO (ankle-foot-orthosis) and custom tennis shoes so that when Tara does walk, her feet and ankles are positioned properly making walking possible and safer. We have had to install an overhead lift into the bedroom which assists Tara in getting in and out of the bed and this has been bittersweet (the device is helpful and makes the bed transfers much easier for us, but its big, bulky and not very aesthetic in Tara's beautiful bedroom). We are grateful that it has been installed but saddened that it is necessary.
The ALS is making it more difficult for Tara to talk and text and her right hand is less functional than it had been making most tasks tedious to say the least. Cheryl has been assisting Tara with the texting and communication. We are waiting on the speech therapist to return to help setup some technology that may assist in this area.
Tomorrow, we will get a loaner electric wheelchair as we wait for the lengthy process of getting evaluated and approved for an electric wheelchair that meets Taras needs and can be adapted as needed. Pray that we get the approval through the insurance company to get the wheelchair. Unfortunately, the process can take 2 months to complete.
We have continued to enjoy the visits and support from family and friends and are overwhelmed and continually shocked at the love sent our way. The meal train has been a lifesaver and we have enjoyed the drop-offs just as much as the yummy meals.
We are so grateful to have such a loving and supportive network, all of our love, Tara and Cheryl