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Posted 2019-03-15T22:40:00Z

MRI Results...

Hello Friends and Family - 

Today Brian was able to speak with the girls' cardiologist about Tarynn's MRI. The reason Tarynn had to go for the MRI was that the echocardiogram she had in the fall showed that her pulmonary valve had moderate/severe leakage and her right ventricle volume was enlarged. 

Well, we received GREAT news today!!! MRI measurements are more precise than echo measurements, and the results of the MRI are that her pulmonary valve has only mild to moderate leakage (20% fraction), that her right ventricle volume is normal, and her right ventricle function is completely normal.  The balance between her right pulmonary flow to her left is 43%/57% which is well within the range of normal. Unless something unexpected happens or she becomes symptomatic, Tarynn will have another echo this summer to keep with her yearly monitoring schedule. If all seems good, she will not need another MRI for 3 years.  So, no surgery in sight!!!  WhooHoo!!!!! This is phenomenal news and we would like to thank all of you who have been keeping Tarynn in your thoughts and prayers over the past week.  We are amazed and relieved to think that she might have 3+ years before needing another open heart surgery, especially since at her cardiac catheterization in 2016, the doctors thought she would be having surgery in about a year.  The longer she can wait before needing another open heart, the better as the technology keeps improving. Also, the bigger she is when it is time for surgery, the better the chance that the doctors will be able to replace the artificial artery that was put in when she was 18 months old with an adult sized artery. 

In our 3/11 update, I mentioned that we were rear-ended on the way home from the hospital.  The good news is that with the preliminary estimates, it looks like our car hasn't been totaled.  Also, Brian and I are feeling fine. Tarynn, however, has a concussion and has been having a difficult time this week.  When she visited the doctor on Tuesday, it looked like her concussion was mild, and so she went to school on Wednesday and Thursday.  However, by the end of the school day, her head was aching, and lights & noises were difficult to tolerate.  Both days after school she laid on the couch, and just seemed so sad. We kept her out of school today and brought her back to the doctor, and it seems that she really needs to "rest her brain". So, she will be laying low this weekend and next week.  She might be able to go to school half days later next week if it seems like she can tolerate it. The plan is for her to go to the doctor for a re-check next Friday (or sooner if her symptoms worsen). 

So, great MRI results and we are optimistic that Tarynn's suffering from the concussion will lessen over the next week or two.  Thank you again to everyone who prayed for good MRI results and to those who sent positive thoughts and supportive words.  The MRI results are far better than we would have dared to hope for, and we are so very grateful and blessed.    

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Comments (10)

  • Ellie Blais
    Ellie Blais

    What wonderful news!!! Although I am sorry to hear about Tarynn's concussion. I hope she is feeling better soon. Please give her my love. Will you be able to make the trip to VT this summer? I am really looking forward to seeing everyone. Love to all. Mom Blais

    one year ago · Reply
  • Lisa Bowen
    Lisa Bowen

    Fabulous news for the MRI results!!! Phooey about the concussion! Healing vibes sent her way!! XO

    one year ago · Reply
  • Sally Zelonis
    Sally Zelonis

    Sorry to hear about the concussion, but great news on the MRI. Getting extra time to grow is a good thing! Hugs to everyone! PS Hope you celebrated National Oreo Day a week or so ago!

    one year ago · Reply
  • Judy Corain
    Judy Corain

    The news about Tarynn’s MRI is awesome! Thank God! Hoping and praying she starts feeling better from her concussion.

    one year ago · Reply
  • Rebecca Christensen
    Rebecca Christensen

    Great news on the MRI results!!! I hope Tarynn is feeling much better after a weekend of rest.

    one year ago · Reply
  • Leigh Plante
    Leigh Plante

    Great news on the MRI! A few years ago , Ashleigh also suffered a terrible concussion and has the same symptoms as Tarynn. We found that having her wear sunglasses as soon as we turned on the lights inside really helped with the headaches. She even wore them to school! Apparently fluorescent and LED lighting really affects those with concussions. Good luck!

    one year ago · Reply
  • Roger P Blais
    Roger P Blais

    Thanks for the great news!! So happy to hear the results and praying that Tarynn's concussion symptoms lessen quickly.

    one year ago · Reply
  • Robin Hagan Aguiar
    Robin Hagan Aguiar

    Happy to hear Tarynn’s MRI news!! Take care of the concussion they aren’t as inconsequential as once thought. Be well Tarynn.

    one year ago · Reply
  • Lynne vendettuoli
    Lynne vendettuoli

    Wow what wonderful news, and you are so right that science changes daily. The longer the operation is put off the less aggressive and new technology are developing. Mark was born with WPW but was silent until his 20’s but the doctors held off with surgery. The difference was cutting his rib cage or waiting for the new technology which he did have going through 2 arteries. The procedure was less invasive and he was one of the first to have it done through the trial period. Tarynn and her sister will still be in my prayers. Love to all Lynne

    one year ago · Reply
  • Aubrey Atwater
    Aubrey Atwater

    Yay about the MRI but so sorry about the concussion. Love to all and here's to a speedy recovery!

    one year ago · Reply