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Posted 2018-08-11T04:43:24Z

One Year

Dear Superfans,

Tuesday, August 14, marks the one-year anniversary when our favorite Jedi received the good news that he was in remission from hairy cell leukemia.  Post a note here to commemorate this special day!  Thank you for your continued love, support, good thoughts, and prayers.[...]

Posted 2018-05-17T00:20:50Z

Good News

Dear Family and Friends,

I received good news from my oncologist today. My blood work revealed that I remain in remission, and the doctor is hopeful that it will be a long one. However, as expected, my immune system is still suppressed, so I need to be careful of infections. My next oncology check-up is scheduled for six months from now.[...]

Posted 2018-05-12T21:49:18Z

Better Each Day

Dear Family and Friends,

I am making good progress and am doing a little better each day. On friday the PA removed the nasal splints. The good news is that there is no sign of infection and that the healing is progressing well. Happily, I can breathe through my nose, though only partially at this point. It will take 6-8 weeks for the swelling to go down. Then I will know what the “new normal” is for me.[...]

Posted 2018-05-07T03:24:36Z

Healing

Dear Family and Friends,

Thank you all for your support and prayers. I am slowly healing from nasal surgery and am making progress. I have been sleeping a lot, and regret not having posted sooner. I have good support here. Thanks to Lisa for the post hope update and Kim for visiting with groceries. [...]

Posted 2017-12-25T19:28:09Z

Seasons Greetings!

Dear Family and Friends,

Merry Christmas and happy holidays! This year I am especially grateful to all of you for your kindness and support through my journey from diagnosis, to  treatment, and to remission.  In many ways I feel like I got my Christmas present in July with your outpouring of goodwill, and it just reinforces the true meaning of the holidays. I can never adequately convey my thanks to you all for your generosity, compassion, and prayers. [...]

Posted 2017-08-14T20:29:37Z

A New Hope

Dear Family and Friends,

Great news, I am in remission! I have been given a second chance at life, and I am incredibly grateful.  Your support and prayers, some wonderful medical care, and divine intervention, have meant all the difference.  My blood cell counts are back to normal, and the doctor is so confident that he has said the port can be surgically removed. This was the best possible outcome. [...]

Posted 2017-08-04T04:31:14Z

Slow but Steady Wins the Race

Dear Super Fans,

The last couple of weeks have been marked by slow but steady progress. Overall I'm feeling better. Fatigue is the main side effect from my chemotherapy. I am still averaging 1 to 2 naps per day, but my body is healing. Overall my appetite is normal.  My main goal now is to get enough rest and to avoid an infection which which would land me in the hospital. Fortunately I'm coming through the period where my immune system is at its weakest.  I still have 10 days until I know if the chemotherapy was effective in knocking the cancer into remission. Until then, I will continue to work remotely from home as I am able. [...]