Update From Friday 19th Feb 21
Hi Everyone, Ellie is doing OK. We had 3 pretty good days where she was semi-bubbly, talkative and eating and drinking. Yesterday and today however she had been very tired, quiet and withdrawn again. She did get up and walk around the ward 2 days in a row and we, and the physio were very impressed! Also, today we wheeled her out to this “Fairy Garden”, a special outdoor area for the kids at the hospital. The weather was beautiful and the air felt so fresh on our skin, but Ellie seemed saddened by it all. I suppose the realization of what is now missing in her life. We moved rooms again and are back in the quad, but there is now only one other little girl. Her name is Amelia, she is 6, and she has huge cheeks from her steroids, an almost bald, fuzzy head, and a very bright energetic attitude! Her Mum is lovely too. They were showing Ellie, and us, pictures of their 5 month old Groodle named Morris ❤️ We think the stars are aligning to tell us we need a Groodle as they are coming up more frequently in conversation and we had already been researching a breeder in NSW :) Paul is on night shift tonight with Ells and Aunty Jen will be there tomorrow for her first “shift”. Medically, Ellie is stable and received her last dose of gentuzamab today, the special chemo that is part of the trial she is in. We hope it works well for her. She has her next LP next Tuesday or Wednesday. Did we tell you that her CNS is all clear? That was excellent news. She is looking very thin now...all the fluid that had built up is gone and she is under the weight that she was when admitted. The goal now will be to keep her weight up.
KC
Comments (18)
Thinking and praying for Ellie, sending love to you all.Love Ginny.xxoo
Your worlds have been flipped upside down - we will be with you through your highs & especially your lows. We love you x
Stay strong and keep fighting team Carter we are with you 110%! We love you and miss you ❤️❤️❤️❤️
Sending all of our love in your direction ❤️❤️❤️
Get the Groodle!
Positive thoughts and lots of love being sent to you all. X
Thinking of you all, and will be following Ellie’s treatments and progress through this journey to remission. Big hugs from the U.S.!
My sister, Mary Jo, put Ellie on 3 prayer lists, and 3 other friends have her on prayer lists at their churches. If prayers work, and I believe that they do, we're in a pretty good situation!!
I have many people praying, as well! Hoping all good news as Ellie progresses through treatments.
Fernando N Elli and you guys are in my Daily Prayers🙏🏻 ❤️🥰❤️
Thank you EVERYONE. Your prayers mean so much!
Praying for good results and a happy spirit!
Praying for you and sending hugs and kisses.🙏🥰
Thanks for allowing us to come along on Ellie’s treatment journey and for taking the time to keep us updated Paul and Kara. Ellie is so strong and the love and strength of your family is just amazing!! We hope Annabelle is doing as best as she can with all this too. Sending love and prayers from Bangkok. ❤️
Love to you all and always thinking and praying for you especially you Ellie you are so brave lots of love Joce and Brian🥰💖xx
Sending so many hugs abs prayers. Thank you for the update.
Sending prayers and hugs. Thinking of you and your family.❤️❤️❤️
So sorry to hear about your beautiful daughter’s illness. I will be praying for her 🙏