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Posted 2018-09-14T01:25:08Z

The Great Equalizer

One of my observations while rehabbing is how spinal cord injuries seem to be an equal opportunity discriminator. Sure, it's mostly younger males* (see below for an original bad joke), but we're a pretty diverse group: all socioeconomic sectors are represented, from blue collar to CEO, and everything in between. What has also struck me is the diverse manner in which each of us injured our spinal cords. While there is a unsurprising prevalence of motorcycle, bicycle and motor vehicle accidents, there is a surprising number of freaky one-off mishaps, including falling off of a deck while throwing a watermelon rind onto the compost heap, trampoline accidents, Slip 'n Slide catastrophes, infections, and spinal cord strokes, to name but a few. Without fail it strikes randomly and in a flash, and leaves its victims temporarily stunned and laid low. But the human spirit is more resilient than the delicate fibers of the spinal cord, and before very long the will to live and make the most of what is left asserts itself. I've witnessed it in myself and every one of my compatriots: we arrive dazed, weak, and utterly demoralized, but as the weeks go by the eyes become clearer, the practiced maneuvers more certain, and the spirit brighter. 


But what other choice is there? To give up, to stop trying? Even a pulled weed grows back if just a tendril of its root is left in the ground. It's the nature of all life to persist, hang on, adapt if needed, and survive at all costs. And so while we all appreciate being told how brave we are, what incredible spirit we've shown, I also feel a bit sheepish from the compliments, as I have no doubt whatsoever that any one of you, if faced with this or a similar challenge, would rise to the occasion as we all have tried to do. 


All this I've learned from the group of patients with whom I was admitted around the same time. We're all in the same corner of the floor, and have bonded in a surprisingly close way. Our injuries all fall under the same category, but vary in their location and severity. My 23 year old heavily tattooed neighbor from West Virginia had multiple spinal fractures, a splintered femur that protruded from his skin and a collapsed lung, and yet it was only a sliver of his lumbar spinal cord that was damaged, and he will almost certainly regain enough function to walk before much longer. The 30-something year old good ole boy from rural Alabama on the other side of my room sustained a high cervical injury, and is now trying to figure out how to make a living and support his wife and children as a quadriplegic. Despite these and other differences, we have found common ground and supported each other during the gaps between therapy sessions, meals and workouts. It's pretty wonderful, and I'll miss every one of them.


Last night I was able to watch a wheelchair rugby practice in the gym on the ground floor of Shepherd. There I witnessed an incredible display of athleticism, strength, and spirit. Most of the players were paraplegic or partial quadriplegics, but one man in particular stood out. This young man had suffered the loss of both arms above the elbows, and both legs above the knees. But the most remarkable thing about him was not his physical appearance but rather his speed and dexterity as he glided across the floor, passing, catching, pivoting on a dime, and generally leaving others in his dust. I went back to my room in awe of how these men have transcended their injuries and are thriving at a level I can only dream of achieving. But it didn't seem so far out of reach that I couldn't imagine myself returning to the road on a hand bike or getting back to working out at the local Y. 


 We had a wonderful time hanging out this past weekend with Rodney Young and Mandi Smith who drove from Staunton to lift our (and drink some) spirits, as well as Jim and Betsy Vance who flew down from New Jersey. Jim and Betsy were along on the ill-fated bicycle ride with me, and Jim was not far behind me as I was catapulted through the ditch alongside the road I inexplicably deviated from. Had he been in front of me Lord knows how long it would have been until someone discovered my broken body. He called 911 and stood by as I waited to be scraped up and taken away for mending. It was therapeutic, I think, for both of us to rehash our memories of the accident and leave it behind us once and for all.


My discharge from inpatient rehab has been moved ahead to Monday to give us a bit more time to get our transfers down pat, and for my bowels to step it up. With any luck my next message will be from the outpatient realm (and shorter).

 

 

*Q: Why are there so few women with spinal cord injuries? 


 A:  Because you rarely hear a woman say, "Hey y'all, watch this!"

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Comments (34)

  • Tami Radecke
    Tami Radecke

    You are truly amazing! Thank you for these heartfelt and meaningful posts. We all miss you at AH. Can’t wait to see you!

    8 years ago · Reply
  • Rita Lehman
    Rita Lehman

    Beautifully written and a real inspiration from all who are learning a new way to live life to the fullest. Happy to hear you will soon be transitioned to out patient status but sounds like you are going to miss your new found buddies! Keep up the hard work!

    8 years ago · Reply
  • S. Erin Akens
    S. Erin Akens

    I absolutely love reading your updates. Your wit and humor are still intact without a doubt! Just as I found a comraderie among the fellow cancer patients at Augusta, so you have too! It's an inexplicable thing but you develop a new sense of family and they will see you through some raw times. Best of luck my friend, can't wait to see you spinning wheels through the hospital!! Much love, Your working dog patient, Stephanie.

    8 years ago · Reply
  • Lee Beam
    Lee Beam

    Whether or not you can accept compliments from others, just understand that when we express how impressed we are with your progress, in some way we are trying to believe that we too could work our way out of a bad position. You are inspiring. Looking forward to you and Nancy being home.

    8 years ago · Reply
  • Ellen Swiss Rosi
    Ellen Swiss Rosi

    Damn Rob.. you can write boy!!! It’s not just your spirit, grace and determination that are evident and cause deserved accolades to pile up in these posts, but things we’ve always known but are shining now.. including your wicked sense of humor and wit. You are impressive Rob, not just cause you’re brave and resilient, but cause you’re smart, funny and a supremely interesting human being. Glad I know ya!! And keep these posts coming!! Xo

    8 years ago · Reply
  • Jenny Acker
    Jenny Acker

    Such a great post! I was just thinking about you today. I heard you got to face time w the “gang”. I know they miss you a lot, so do the patients! So much you have learned from all of this-who ever would have thought YOU could possibly get any smarter lol- so proud of how far you’ve come and how fast you’ve gotten there! You’re truly amazing! Can’t wait to see you! Practice your pivoting, we will expect a demonstration when you get home!! Hugs - Jenny

    8 years ago · Reply
  • Frank Gearing
    Frank Gearing

    Facing reality directly. I love it. I hope you are correct that we all could/would address the changes with perseverance and determination. Your writings are so on spot. Have you considered a book on your experience? We are all continuing to learn from you I believe you may have an additional calling. On to output. rehab. Rooting for your team!

    8 years ago · Reply
  • Virginia Lloyd-Davies
    Virginia Lloyd-Davies

    Laughing.....

    8 years ago · Reply
  • Elaine Dunaway
    Elaine Dunaway

    Rob- Thanks for this. I’m not convinced I would be as resilient if this happened to me and therefore I think of you as brave and having an incredible spirit! I follow a quadriplegic artist on twitter - he put this quote out and I thought of you when I read it. ‘Start by doing what's necessary, then do what's possible and suddenly you are doing the impossible.' - St Francis of Assisi

    8 years ago · Reply
  • Melissa Orlov
    Melissa Orlov

    ...and a variation...'Hold my beer, watch this!" It was really great to hear how clear your voice sounds now that you are off your pain meds. I can only imagine how great it feels to have your brain back, too. Melissa

    8 years ago · Reply
  • Sallie Strickler
    Sallie Strickler

    What a beautifully written message to read tonight. You continue to be in my thoughts and prayers and to inspire me to make the most of every day. Your sense of humor and positive perspective are amazing.

    8 years ago · Reply
  • Karen Robertson
    Karen Robertson

    As we have seen in the office there is such a bond that forms between patients that are facing a common disease (or in your case...challenge). Now you have experienced first hand what we as staff have watched develop between our patients, a strong family bond that's not rooted in blood...but common challenges. Best wishes for outpatient rehab, not a bad idea to solidify those transfers a liitle more before moving on. Your description of the young man that left everyone in his dust was amazing. I have to admit that your writing a book came to my mind as well...take lots of notes just in case. Karen

    8 years ago · Reply
  • Jeff Zilberfarb
    Jeff Zilberfarb

    Hi, Rob, Thanks for the update. You are an inspiration to all of us. I have seen a lot of injured people in my career and I’m always amazed at those who can rise above their injury with their love of life intact. You clearly have what it takes and I look forward to catching up with you next time we are in VA.

    8 years ago · Reply
  • Anita Sowers
    Anita Sowers

    Wow. If only I was as eloquent as you and could articulate my thoughts as beautifully as you do. It takes something like this to give us a different perspective on life. I feel certain you will find a new enriching purpose to your life. You certainly have all of us rethinking ours. As someone else said, we all look forward to having you and Nancy back in Staunton. Love to both of you Anita Sowers

    8 years ago · Reply
  • Nancy Neal
    Nancy Neal

    You are a great writer...thank you for sharing your story. Perhaps there’s a book waiting to be written from this journey you are on! You are graphically honest, funny and your words speak to everyone who reads them! Bless you and your family.

    8 years ago · Reply
  • Brian Ross
    Brian Ross

    Such an emotional and uplifting post, it is incredible what the human spirit can overcome especially with the right support and encouragement. Seeing what you are seeing through a doctor's eyes surely lends a different perspective on things and we know that it will only make you even better in your work than you were before. Prayers continue for you from Penny and I and we look forward to your return to Virginia, God Bless Sir Robert.

    8 years ago · Reply
  • Deborah Thompson
    Deborah Thompson

    Dr Kyler you give me such inspiration every time I read one of your posts. I don't think I can be as positive as you are but I'm sure going to try. You absolutely amaze me with your willpower and your positive attitude. I try to remember as i go through each day that I dont have it as bad as you do so surely I can get through just one more day. Hopefully i can keep going forward each day and until I make some progress. I wish you the best of luck on your journey. Sincerely. Deborah Thompson.

    8 years ago · Reply
  • Lauren Jones
    Lauren Jones

    As related to your joke at the end there: I have a coloring book for nurses, and one of the pages says "I'm the first person you see after you say, "Hold my beer and watch this."

    8 years ago · Reply
  • Nancy Gregory
    Nancy Gregory

    Rob your post is so beautifully written and expressive, I didn’t want it to end . We are all inspired by your courage and know you have every reason to be strong and determined because Nancy is by your side .

    8 years ago · Reply
  • Valerie Weaver
    Valerie Weaver

    How timely to read your thoughts in this post. I just told someone that Rob Kyler will be one of those who rocks that wheel chair! I said he will push that chair to the limit, be the guy doing wheelies - you won't even think about him being in a chair. Your post proves what I said. You will conquer your new lifestyle because you are the kind of guy that is up to a challenge and you will master it. Happy to hear you are coming home soon. Love to you and my dear friend, Nancy.

    8 years ago · Reply
  • Vicki A Stinnette
    Vicki A Stinnette

    You are amazing and a wonderful writer...If you write I will edit for you!!! Your perspective should be written down to help others in the future. Using your posts... would be a great start!!! Thinking of you and Nancy and wishing you home. If you keep getting so smart, it will be hard to keep up with you!!! Love to all, Vicki

    8 years ago · Reply
  • Wayne Kauffman
    Wayne Kauffman

    So interesting to read your words and thoughts and see how they have changed from high school and college days (dang it Wayne stop the analytics!). Will the nice weather delay your transition out? The observation about gender bias for the injuries led me to the concern that there doesn't seem to be a solid list of female candidates for the Darwin's Awards. Do guys preferentially remove ourselves from the gene pool?

    8 years ago · Reply
  • Patricia Austin,MD
    Patricia Austin,MD

    If rehab doesn't have statements like yours for other patients, they should, including the jokes. (Really good one.) Inspiration comes from the difficult situations, not the easy ones.

    8 years ago · Reply
  • STEVE MCDONOUGH
    STEVE MCDONOUGH

    you are a strong man!!! Can't wait to see you at the Y. God Bless!!

    8 years ago · Reply
  • Nancy Schrader
    Nancy Schrader

    Your spirit and courage continues to give me encouragement on my journey. I got back on my bike as all your friends have because we know that is what you would want. With your progress you will be on a recliner clycle with all your buddies next summer. Looking forward to it!

    8 years ago · Reply
  • Julie Thurnau
    Julie Thurnau

    I am so glad to read this! Few people have the capacity to step back and revel in their new life perspective, especially after a tragic accident. Even less people have the capacity to see beauty in this new path, especially when it was not their chosen one. You are a special soul! Safe travels home.

    8 years ago · Reply
  • Phil Lerman
    Phil Lerman

    These are wonderful, articulate, astoundingly hopeful, and incredibly inspiring words, from a wonderful, articulate, astoundingly hopeful and incredibly inspiring man. All love and joy from Washington, and watch out -- we plan to show up in Virginia with food and drink as soon as possible.

    8 years ago · Reply
  • Jo Terry
    Jo Terry

    Rob, you are a fabulous writer! Traveling mercies as you go to the next phase of your recovery. I can only echo the comments of others - you are an inspiration. Please give Nancy a hug from an old AMAA friend.

    8 years ago · Reply
  • Carol Jo Mills
    Carol Jo Mills

    I only wrote to you once before but haven’t stopped praying for you since your accident. I think you’re amazing and love reading your comments! I also see a book in your future... it would be a shame for you not to write one! I’ll keep praying..you keep working on getting well... and we all will be happy to know you’re back home! Carol Jo Mills

    8 years ago · Reply
  • Ellen Lewis
    Ellen Lewis

    Hey Rob, It's great to hear your insights and progress. It's really wonderful that you're beginning to return to the stuff of life. They always say that people return to their normal temperaments after virtually all life changes, both very good and very difficult. But it's fascinating to hear a first-hand account. Just feeling normal has got to feel good. I can see you with a hand bike, definitely! There are so many electric bikes now in the city, which switch from pedal to power. They're really interesting. Hope your next post is from home! Sending love to you and Nancy, e

    8 years ago · Reply
  • Cindy Cohanim
    Cindy Cohanim

    Rob, you have always been incredible with the spoken word but who knew how eloquent you are with the written word. When life evens out I think an inspirational book might be in your future. Keep on fighting! Cindy xo

    8 years ago · Reply
  • Linda Morrison
    Linda Morrison

    Dear Rob, You really do know how to yank a guy's heart strings don't you! I think about you a lot and each time it causes me to come close to lacrimation and definitely puts me in a doleful state. In spite of that , I am SO glad to hear of your progress and your positive attitude. My boy don't forget what we W.Va. rednecks say (about the ABCC) don't let the SOBS get you down! Your positive attitude just simply blows me away. Keep up the onerous work because it will pay off. As soon as our paths cross I get to be the one to go get a square jar of good old Black label Uncle Jack. Now I know damn well you won't argue with that because that stuff is SOOO good! Glad to hear you are getting positive notes from folks who really think the world of you. You definitely deserve them. Let me go with one of my William Claude Dunkenfeld's [a.k.a.} W.C. Field's lines "Yes, I once fell in love with a beautiful woman she drove me to drink and that's the one thing I'm indebted to her for". (sorry for the bad grammar but that is the way he said it. Keep up the hard work my boy!!!!!!. Glenn

    8 years ago · Reply
  • Dianne Moody
    Dianne Moody

    You have a gift for writing! Thanks for sharing with us. I hope you continue to make progress so you can get home!

    8 years ago · Reply
  • Sam Augsburger
    Sam Augsburger

    Thank you. Bless you.

    8 years ago · Reply