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Posted 2013-03-02T14:50:12Z

Trails of Long term EEG

we checked in yesturday for  Williams EEG and it's been a long haul he's worn out and so am I yesurday it took from 12:10 to 1:30 to get him hooked up and the Whole time my poor little boy did nothing but scream his little Head off My Heart was breaking but it had tobe done when we did get done he's eyes were so swollen from all the screaming....   he napped for a hour once we got  back to our room  then he was up until almost 11:30 last night which a most friends and family know isn't  him he only slept until 6am and then  was back up it didn't help the face they werein here bothering him so offen...   he played or e played until 8:30 when his breakfast came then he ate and I thn rocked him  at this point he is Happily napping..  we didn't get to mark any of our night time spells because he never got into a rem sleep since they kept waking him up..   but the doctor tole me this morning she would change the orders to only do BP, Temp and all that jazzy stuff at shift change so 7Am and & 7Pm  So hopefully tonight we will get that chance to mark those we did mark a spot wherehe was having trouble with his arm...  and a few head banging issues...   well I will Update again soon i will be getting some sleep myself as i only dozed in and out last night the smallest peep and my eye were wide open.. thank you again to all and to let you all know our MRI is on the 13 of march so another couple of weeks before we have that...

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