Don's report
I love visiting this site and seeing that beautiful picture of Becca!
I've had a bit of a rough week so far. As some of you know, for the last two plus years I've had an undiagnosed intermittent pain and fatigue condition that is lessened by anti-inflammatories I take daily, but still occasionally flares up - particularly when I am under stress physically or emotionally. No surprise then that it flared up this week.
Monday I was too exhausted to do much. I felt better Tuesday, and was able to be fully present accompanying Becca to chemo, and supporting her that evening and night, during her difficulties with nausea and malaise (albeit with some mild pain in my own shoulders, arms and hands), but exhausted myself a bit. So, though my symptoms are better, I'm taking it easy today - including getting out for a long walk.
One highlight for me from last night was reading to Becca from Pema Chodron's book Starting Where You Are. Ani Chodron has an amazing ability (like my root teacher Thich Nhat Hanh) to take complex teachings and express them simply. The teachings in this book emphasize compassion and the practice of sending and taking (usually called by its Tibetan name, tonglen). Tonglen is a practice of being fully present to the suffering in your own life, with an awareness that your suffering is just a piece of the immensity of human suffering, and allowing your heart to feel the compassion and love for yourself and all the others in similar situations.
A student of Thich Nhat Hanh's who is living with ALS recently told the following story in an email that captures this:
Last year I had the great fortune of having a visit at home from one of the high monks in the Tibetan Gelug tradition, Geshe Thupten Phelgye. I asked him how one should prepare to die. He responded by telling me the story of his recovery from very serious liver disease and said that what had helped him the most was giving himself totally to the metta practice of taking and sending (tonglen). It helped him see his personal suffering as a drop in the sea of all suffering, knowing that all living beings, from the smallest microbe to the greatest bodhisattvas and gods of the Tibetan tradition, are seeking well-being. He kept saying, "Suffering is infinite; I am just one!" His parting word for me was "Practice compassion!"
I'm doing my best to take that to heart.

Comments (8)
Practice compassion.....a great thing to remember. I'm off to deliver a Lenten sermon on "Blessed are they who mourn, for they shall be comforted."
Don, I really appreciate you letting us know how YOU are doing. I'm always aware that you are there at the core of Becca's life and care. I didn't know that you struggle with some chronic pain and fatigue. Thanks for being forthcoming about it. Will keep you in my thoughts -- Anne
What a great teaching. I hope you feel better soon, Don. I also hope the RNs can find something to prevent Becca's nausea. I'm with you both in my heart as you make this journey. love, Joan
Thanks for continuing to share your journey with us, Don. I hope your symptoms abate soon. That was an inspiring teaching from Geshe Thubten Phelgye: "Suffering is infinite, I am just one." May you and Becca be blessed with infinite compassion as you continue along the path.
May you be blessed with good health and peace. May you be strong in body and heart. May your journey take you to peaceful places. Bilha
Hi Don I am very appreciative of your ability to be honest about your love and admiration for Becca as well as sharing your own condition and needs. Fatigue can be difficult to endure, especially if it does not come with a set diagnosis. My wish for you is that you may both experience peace in the smallest of moments, and take comfort in the knowledge that you are being held by loved ones and friends. Sue
Glad to hear that while you're taking great care of Becca, you're taking care of yourself, Don. Very wise. All my best, and, as always, take care! - Angela.
Thank you for sharing this deep wisdom, Don, for sharing this practice of compassion that encompasses all. May you and Becca be well, dear friend. Metta, Mary