Caleb Update 10/11/22

After 7 weeks, we are home!  Well, for a little while.  The last few weeks have been very eventful.  Last week, on Monday they placed an apharesis catheter in Caleb’s neck. This was then used to collect his T-cells in case we need to go to Car-T therapy in the future.  Once they collected enough cells, they removed the catheter later that day.  Totally nuts, but we are glad they were able to do it.  On Wednesday, he started on his immunotherapy, Blinatumomab, which is a 28-day continuous infusion.  It has a great success rate of getting patients into full remission, so fingers crossed.  We had to stay in the hospital for 3 more days so they could monitor him to make sure he didn’t get any side effects from the drug.  Caleb did spike a fever on Friday, but was fever free on Saturday, so we were able to go home on Sunday! He is doing well on this therapy.  He gets fatigued much faster than usual and still has a lot of weakness in his legs, but overall feels pretty good.  We are home most likely for the next two months, returning to the hospital twice a week to change his med pack and get blood work, unless he gets a fever and then we are admitted again. Once this first Blinatumomab cycle is over he will have another bone marrow biopsy. The hope is that he is in full remission.  If that is the case, we will figure out the best course of treatment moving forward.  This will most likely lead to Bone Marrow Transplant in one way or another. So it is still a long road ahead. But, we are all hanging in and continuing to try to take things one step at a time, which is not the easiest thing of course. But, being at home is really helpful.  We have never been so grateful to do dishes! Thank you all so much for your continued support.  It means so much to us and  we feel the love coming our way every day.